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Family Views

Here are some of the comments we have received from a few of the families we are working with.

“I really felt listened to and you cannot know just how important that is to me. I’m sure you recall just how frustrated I have felt in living through this experience. It was so unnecessary.”  NL

 

“Thank you for your valuable help.  You have been very kind and have put us in touch with the right people.  You do wonderful work for head injured people and you understand them.”   KJW

 

“We appreciate your input into our lives .  Now things are slowly turning around for us”.   Anon

 

It is a refreshing change to speak to someone who actually ‘gets it’ and knows what I am talking about.  We have been left in limbo and despair for many years.  I cannot explain the massive difference you have made.”   AD

 

“I think I was ready for giving up – just as I found you. Thank you for saving my baby” xxxx   Anon

 

We are so happy to have found this service.  We are getting so much more help and support – more than we have had in years.”  GR

 

The therapies you provide are really beneficial and I now get time to relax which is really helping me.”   CS

 

“We can’t believe the amount of work you have done for us.  We appreciate it all”.  Anon

 

 

 

 

 

 

 


"Often families don't have the financial capability to access services. We need to rethink how we delivery neuro-rehab services to children and young people"
Vicki Anderson; Australia
"Restoration of anatomical functions and relationships must be done within 2 months of brain injury"
Eyzyon Eisentein; Israel
"Our 10 year study proves that family-led home-based neuro-rehab interventions deliver the best outcomes for children and young people"
Lucia Braga; Brazil
"Participation in teen sports and normal activities leads to improved quality of life for children and young people post brain injury and helps to maximise outcomes"
Claire Willis; Australia
"Too often children and young people with ABR are discharged from hospital without specialist brain support that they and their families need to overcome lifelong challenges"
Andrew Ross; former Chief Executive of the Children's Trust
"NHS clinicians struggle with what intervention to priorities in pediatric neuro-rehabilitation due to limited clinical time and the complexity of needs. Children, clinicians, parents and schools all have different neuro-rehabilitation priorities"
Recolo; United Kingdom
"Poor parenting styles affects children's behavior; increased their learning disability; and had a negative impact on emotions; anxiety; anger management post brain injury"
Andrea Palacio-Navarro; Spain
"Brain development is complex and prolonged. Brain plasticity is influenced by a range of factors. Plasticity provides a base for neuro-rehab therapies and treatment"
Professor Bryan Kolb; Canada
"When someone has a brain injury, early access to local, specialist rehabilitation is crucial to ensure the maximum recovery and make significant savings to the state in health costs"
Headway; United Kingdom
"More play increases brain plasticity and makes for better recovery post brain injury"
Professor Bryan Kolb; Canada

OUR MISSION: to work to remove health inequalities for children & young people affected by acquired brain injury; and provide effective support to their families that makes a real difference.

Council for Disabled Children Lottery Funded