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What do we know about local provision?

Currently, the local NHS patient pathway for paediatric brain injury is as follows:

  • Traumatic brain injury patients are admitted to either James Cook University Hospital or The Great North Children’s Hospital (formerly known as the RVI Newcastle)
  • Atraumatic acquired brain injury – the majority go to the Great North Children’s Hospital but also to James Cook University Hospital as well as district hospitals
  • After initial stabilisation and acute care, children receive intense in-patient neuro-rehabilitation
  • Multidisciplinary – physiotherapist, occupational therapist, speech and language therapist, neurophsychologist, play therapist, ward teacher, paediatrician/neurologist
  • There is goal setting and assessment
  • Rehabilitation only tends to focus on mobility, improving speech/communication, swallowing, activities of daily living and self care
  • Discharge to home with ongoing rehabilitation in the community eg physiotherapist, occupational therapist, speech and language therapist, neuropsychologist
  • Educational psychologist and special educational needs coordinator

Problems with current community provision across a range of sectors and professions:

  • No common goal setting
  • Uncoordinated
  • Infrequent – it is not enough
  • An unfamiliarity with the challenges of acquired brain injury

What do children and young people need for better outcomes?

  • Well coordinated, integrated community neuro-rehabilitation – managed by a Case Manager taking on the child’s individual specific needs
  • Increased access to community based therapy which is intensive, individualised and supplements and compliments existing services
  • Individualised education support which starts at home and then integrates into school
  • Ongoing education, advocacy and practical support for families aimed at reducing parental burden and improving individual health and wellbeing

We know that this cannot be achieved from a distance!

Being integral to local public, private and third sector networks is essential to maximise the benefits of local resources to get the best possible outcomes for children, young people and their families; especially in times of austerity.

This is why MATRIX Neurological has been formed.  We use ‘the lived experience’ to drive change, build partnerships, pool resources and save money; thus do more-for-less.


"Taking brain injured children home causes high stress for families. Disjointed services exacerbate family stress levels."
Deborah Andrews; New Zealand
"NHS clinicians struggle with what intervention to priorities in pediatric neuro-rehabilitation due to limited clinical time and the complexity of needs. Children, clinicians, parents and schools all have different neuro-rehabilitation priorities"
Recolo; United Kingdom
"Our 10 year study proves that family-led home-based neuro-rehab interventions deliver the best outcomes for children and young people"
Lucia Braga; Brazil
"There are problems with getting people into neuro-rehab centres. Those most in need are often those most excluded due to a lack of socio-economic resources."
Vicki Anderson; Australia
"Healthy teens are better at identifying strategies to deal with barriers. KIDS WITH ABI'S CAN'T!"
Shari Wade; USA
"Brain development is complex and prolonged. Brain plasticity is influenced by a range of factors. Plasticity provides a base for neuro-rehab therapies and treatment"
Professor Bryan Kolb; Canada
"Restoration of anatomical functions and relationships must be done within 2 months of brain injury"
Eyzyon Eisentein; Israel
"Often families don't have the financial capability to access services. We need to rethink how we delivery neuro-rehab services to children and young people"
Vicki Anderson; Australia
"Parent-supported interventions following pediatric ABI bring reductions to the cost to society"
Eric Hermans; Netherlands
"Poor parenting styles affects children's behavior; increased their learning disability; and had a negative impact on emotions; anxiety; anger management post brain injury"
Andrea Palacio-Navarro; Spain

OUR MISSION: to work to remove health inequalities for children & young people affected by acquired brain injury; and provide effective support to their families that makes a real difference.

Council for Disabled Children Lottery Funded