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Neuro-rehabilitation

What does neuro-rehabilitation do?

‘Rehabilitation aims to reduce the impact of (brain) injury by resoration of damaged function, or compensation for lost function, within the limitations of underlying diseas, to optimise physical, cognitive, psychological and social function.’

(Seeley & Hutchinson, 2006)

What do we know?

From adult studies of traumatic brain  injury:

Better access to neuro-rehabilitation associated with better outcomes means people:

  • are more likely to be discharged home
  • have a shorter hospital stay
  • have better functional outcome which was maintained after period of rehabilitation has ended
  • decreases levels of distress of carers

Additionally, the outcome of a paediatric acquired brain injury is related to family function, economic factors and social support

Neuro-rehabilitation is most effective if:

  • It is delivered by a co-ordinated multi-disciplinary team with an interdisciplinary approach
  • There is goal setting and assessment
  • There is a key worker to communicate and provide advocacy for the child and the family
  • It is individually tailored to need
  • Is seamless
  • It is meaningful and delivered in relevant context
  • An appropriate level of therapy and support is provided
  • Access to suitable educational provision is available
  • Psychological needs are addressed
  • It involves and supports the family

 


"Parent-supported interventions following pediatric ABI bring reductions to the cost to society"
Eric Hermans; Netherlands
"Participation in teen sports and normal activities leads to improved quality of life for children and young people post brain injury and helps to maximise outcomes"
Claire Willis; Australia
"Too often children and young people with ABR are discharged from hospital without specialist brain support that they and their families need to overcome lifelong challenges"
Andrew Ross; former Chief Executive of the Children's Trust
"We are medical practitioners. The real experts are the parents. Over the last 35 years they have taught me everything I know"
Lucia Braga; Brazil
"Often families don't have the financial capability to access services. We need to rethink how we delivery neuro-rehab services to children and young people"
Vicki Anderson; Australia
"Rehabilitation interventions can lead to positive outcomes for children and their families if delivered in the familiar home environment and applied to everyday situations"
Cerebra; United Kingdom
"Taking brain injured children home causes high stress for families. Disjointed services exacerbate family stress levels."
Deborah Andrews; New Zealand
"We would like to see earlier identification and support for children with brain injuries to help them succeed in school."
Dalton Leong; Chief Executive of the Children's Trust
"When different organisations assess different aspects of a child's neuro-rehabilitation needs, everyone looks at things from a different perspective and highlight needs and conflicting priorities"
Cathy Jonson; Rehab without Walls; United Kingdom.
"Positive and coordinated neuro-rehab interventions for children and young people is prove to bring health improvements; improve independence; a decline in the need for sheltered living; decreases vulnerability; decreases drop-out rates in schools; decreases youth offending"
Eric Hermans; Netherlands

OUR MISSION: to work to remove health inequalities for children & young people affected by acquired brain injury; and provide effective support to their families that makes a real difference.

Council for Disabled Children Lottery Funded