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Neuro-rehabilitation

What does neuro-rehabilitation do?

‘Rehabilitation aims to reduce the impact of (brain) injury by resoration of damaged function, or compensation for lost function, within the limitations of underlying diseas, to optimise physical, cognitive, psychological and social function.’

(Seeley & Hutchinson, 2006)

What do we know?

From adult studies of traumatic brain  injury:

Better access to neuro-rehabilitation associated with better outcomes means people:

  • are more likely to be discharged home
  • have a shorter hospital stay
  • have better functional outcome which was maintained after period of rehabilitation has ended
  • decreases levels of distress of carers

Additionally, the outcome of a paediatric acquired brain injury is related to family function, economic factors and social support

Neuro-rehabilitation is most effective if:

  • It is delivered by a co-ordinated multi-disciplinary team with an interdisciplinary approach
  • There is goal setting and assessment
  • There is a key worker to communicate and provide advocacy for the child and the family
  • It is individually tailored to need
  • Is seamless
  • It is meaningful and delivered in relevant context
  • An appropriate level of therapy and support is provided
  • Access to suitable educational provision is available
  • Psychological needs are addressed
  • It involves and supports the family

 


"Pediatric neuro-rehabilitation cannot be delivered in isolation. The needs of the child have to be looked at both holistically and within the context of the family unit. Parents need to be empowered to be parents in post-acute pediatric neuro-rehabilitation following brain injury"
The Children's Trust; United Kingdom
"Positive and coordinated neuro-rehab interventions for children and young people is prove to bring health improvements; improve independence; a decline in the need for sheltered living; decreases vulnerability; decreases drop-out rates in schools; decreases youth offending"
Eric Hermans; Netherlands
"Rehabilitation interventions can lead to positive outcomes for children and their families if delivered in the familiar home environment and applied to everyday situations"
Cerebra; United Kingdom
"Children and young people have poor social competence post brain injury due to reduced cognition, executive functions, and emotional control. As a result they are twice as likely to have mental health issues in the future"
James Tonks; University of London
"Often families don't have the financial capability to access services. We need to rethink how we delivery neuro-rehab services to children and young people"
Vicki Anderson; Australia
"Healthy teens are better at identifying strategies to deal with barriers. KIDS WITH ABI'S CAN'T!"
Shari Wade; USA
"We need to harness the power of brain plasticity for treating children and young people with brain injury. Stressful experiences alter brain development of a child, especially at the key ages of 0-3 and at ages 10-16"
Professor Bryan Kolb; Canada
"Different 'experts' involved in pediatric neuro-rehabilitation come from different organisational cultures which causes conflict and has a negative effect on the outcomes for the child."
Barbara O'Connell; Ireland
"There are problems with getting people into neuro-rehab centres. Those most in need are often those most excluded due to a lack of socio-economic resources."
Vicki Anderson; Australia
"Families and professionals spend time focusing on the negative aspects of ABI. Families need to be properly supported as 'resilience' is key to delivering successful outcomes for children and young people."
Roberta De Pompeii; USA

OUR MISSION: To work to remove health inequalities for children & young people affected by acquired brain injury; and provide effective support to their families that makes a real difference.

Council for Disabled Children Lottery Funded