Here at MATRIX we aim to ensure you receive a seamless service because we think this is important. We know how frightening and daunting it can be when a child or young person, who has been so desperately ill, is discharged from hospital with a life-changing condition. We believe that you should not have to go searching for the information and support that you need; you should have been made aware of what ongoing support will be provided and who will be providing it.
Wherever possible we aim to work closely with hospital clinicians and become a valuable part of the discharge planning process to try to ensure the service you receive is seamless. You or your clinician(s) can contact us directly at any time to discuss your ongoing support needs. You can access our services at the point of discharge or can be referred to us at any out-patient appointments or services that you may be accessing.
Should our services be recommended to you, will arrange to meet you at a suitable time and place for you, to commence the support planning process as soon as possible.
"There are problems with getting people into neuro-rehab centres. Those most in need are often those most excluded due to a lack of socio-economic resources."
"Taking brain injured children home causes high stress for families. Disjointed services exacerbate family stress levels."
"NHS clinicians struggle with what intervention to priorities in pediatric neuro-rehabilitation due to limited clinical time and the complexity of needs. Children, clinicians, parents and schools all have different neuro-rehabilitation priorities"
"Strength-based family intervention after pediatric ABI is essential. Parents need to be equipped with the skills to cope and advocate for the child."
"Pediatric neuro-rehabilitation cannot be delivered in isolation. The needs of the child have to be looked at both holistically and within the context of the family unit. Parents need to be empowered to be parents in post-acute pediatric neuro-rehabilitation following brain injury"
"We would like to see earlier identification and support for children with brain injuries to help them succeed in school."
"We need to harness the power of brain plasticity for treating children and young people with brain injury. Stressful experiences alter brain development of a child, especially at the key ages of 0-3 and at ages 10-16"
"Families and professionals spend time focusing on the negative aspects of ABI. Families need to be properly supported as 'resilience' is key to delivering successful outcomes for children and young people."
"New parenting support intervention showed how parenting style is related to executive dysfunction in children and young people post brain injury. With support parents cope better so the child has a better recovery"
"Different 'experts' involved in pediatric neuro-rehabilitation come from different organisational cultures which causes conflict and has a negative effect on the outcomes for the child."