We are now looking to recruit volunteers for our new Family Support Project. We are looking for friendly, reliable people who can provide low level practical support to families who have a child living with the effects of a brain injury. This may include practical tasks such as light housework or small amounts of shopping. […]Read more
"Families and professionals spend time focusing on the negative aspects of ABI. Families need to be properly supported as 'resilience' is key to delivering successful outcomes for children and young people."
"NHS clinicians struggle with what intervention to priorities in pediatric neuro-rehabilitation due to limited clinical time and the complexity of needs. Children, clinicians, parents and schools all have different neuro-rehabilitation priorities"
"When different organisations assess different aspects of a child's neuro-rehabilitation needs, everyone looks at things from a different perspective and highlight needs and conflicting priorities"
"We are medical practitioners. The real experts are the parents. Over the last 35 years they have taught me everything I know"
"Participation in teen sports and normal activities leads to improved quality of life for children and young people post brain injury and helps to maximise outcomes"
"Restoration of anatomical functions and relationships must be done within 2 months of brain injury"
"Pediatric neuro-rehabilitation cannot be delivered in isolation. The needs of the child have to be looked at both holistically and within the context of the family unit. Parents need to be empowered to be parents in post-acute pediatric neuro-rehabilitation following brain injury"
"There are problems with getting people into neuro-rehab centres. Those most in need are often those most excluded due to a lack of socio-economic resources."
"Often families don't have the financial capability to access services. We need to rethink how we delivery neuro-rehab services to children and young people"
"Intensive and individualized approaches work. A one-size-fits-all approach doesn't. You have to make it relevant to the child."