Jan has lived-experience of acquired brain injury in children, young people and adults. She has a degree in Public Service Management, Certificate In Lean Organisation Management and is an experienced Prince2 Practitioner. Jan also has several CPD leadership qualifications and is a frequent speaker at professionally focused Brain Injury Conferences. Her Continuous Professional Development training includes: Paediatric Acquired Brain Injury; Special Education Needs and Disability; Paediatric neuro-rehabilitation; and Understanding children with SEBCMH issues. Jan manages the charity day-to-day and she delivers acquired brain injury awareness training to a range of professionals, sectors and organisations.
Nicola has an N.V.Q. Level 3 in Business Administration. She also has lived-experience of both acquired brain injury and childhood learning disability. Nic provides the important link between our families and the charity; undertakes regular home visits; and supports the Case Manager with case administrative functions.
Mary has a professional background in neurological rehab Occupational Therapy. As a fully qualified therapist, we were delighted when she gained employment with us in April 2019. Mary’s role is part-supported by a BBC Children in Need grant to provide 1-1 emotional and development support and stimulating and fun activities to children and young people to assist with their cognitive, communication or emotional and behavioural recovery. Mary is a keen sportswoman and also helps out with our Kids-Club.
Our office volunteers all live locally and provide a range of essential support functions.
Christine helps with a range of important back office functions and is happy to help out wherever we need her. She also has personal experience of acquired brain injury both in children and adults.
"Families and professionals spend time focusing on the negative aspects of ABI. Families need to be properly supported as 'resilience' is key to delivering successful outcomes for children and young people."
"Poor parenting styles affects children's behavior; increased their learning disability; and had a negative impact on emotions; anxiety; anger management post brain injury"
"Case management for children and young people post acquired brain injury is 'pivotal' to successful outcomes and must be local"
"NHS clinicians struggle with what intervention to priorities in pediatric neuro-rehabilitation due to limited clinical time and the complexity of needs. Children, clinicians, parents and schools all have different neuro-rehabilitation priorities"
"Participation in teen sports and normal activities leads to improved quality of life for children and young people post brain injury and helps to maximise outcomes"
"Pediatric neuro-rehabilitation cannot be delivered in isolation. The needs of the child have to be looked at both holistically and within the context of the family unit. Parents need to be empowered to be parents in post-acute pediatric neuro-rehabilitation following brain injury"
"Too often children and young people with ABI are discharged from hospital without specialist brain support that they and their families need to overcome lifelong challenges"
"Healthy teens are better at identifying strategies to deal with barriers. KIDS WITH ABI'S CAN'T!"
"Different 'experts' involved in pediatric neuro-rehabilitation come from different organisational cultures which causes conflict and has a negative effect on the outcomes for the child."
"When different organisations assess different aspects of a child's neuro-rehabilitation needs, everyone looks at things from a different perspective and highlight needs and conflicting priorities"