Advice & Information

One of the key things we agreed at the outset as an organisation was NOT to signpost you to other organisations. Our Founder once found herself in a sign-posting loop, and at one point spoke to 33 people from 13 different organisations – and got nowhere because those individuals simply did not want to take on any responsibility for solving the problem.

We believe sign-posting simply drops the problem back onto you – when you are already under a significant amount of stress. So if you come to us for help – then we will help you. We think the frustration, disappointment and anger Jan felt at that time was unnecessary. So we see it as our role to help you solve your problems so that you can concentrate on providing the right help and support to your child.

We will therefore undertake the service navigation work for you and find the information you need. We will then ensure we send the people you need to see directly to you. This removes any added pressure on you and should enable you to receive the right additional help and support that you need, both appropriately and quickly.

"With support parents cope better so the child has a better recovery"

Andrea Palacio-Navarro; Spain

"There are problems with getting people into neuro-rehab. Those most in need are often those most excluded due to a lack of socio-economic resources."

Vicki Anderson; Australia

"My colleague was blown away by the tremendous work your organisation is doing for society." Social Worker

"When someone has a brain injury, early access to local, specialist rehabilitation is crucial to ensure the maximum recovery and make significant savings to the state in health costs"

Headway; United Kingdom

"Children and young people have poor social competence post brain injury due to reduced cognition, executive functions, and emotional control. As a result they are twice as likely to have mental health issues in the future"

James Tonks; University of London

"Healthy teens are better at identifying strategies to deal with barriers. KIDS WITH ABI'S CAN'T!"

Shari Wade; USA

"Case management for children and young people post acquired brain injury is 'pivotal' to successful outcomes and must be local"

Deborah Andrews; New Zealand

"Brain development is complex and prolonged. Brain plasticity is influenced by a range of factors. Plasticity provides a base for neuro-rehab therapies and treatment"

Professor Bryan Kolb; Canada

"Often families don't have the financial capability to access services. We need to rethink how we deliver neuro-rehab services to children and young people"

Vicki Anderson; Australia

Child 1 - Aged 14 and 3 years after a traumatic brain injury

	2019	2020	Change
REASONING	301/800	426/800	+ 125
MEMORY	181/800	304/800	+ 123
ATTENTION	463/800	573/800	+ 110
COORDINATION	47/800	309/800	+ 262
PERCEPTION	158/800	374/800	+ 216

OUR MISSION: To work to remove inequalities for children & young people affected by acquired brain injury; and provide effective support to their families that makes a real difference to their lives.