Advice & Information

One of the key things we agreed at the outset as an organisation was NOT to signpost you to other organisations. Our Founder once found herself in a sign-posting loop, and at one point spoke to 33 people from 13 different organisations – and got nowhere because those individuals simply did not want to take on any responsibility for solving the problem.

We believe sign-posting simply drops the problem back onto you – when you are already under a significant amount of stress. So if you come to us for help – then we will help you. We think the frustration, disappointment and anger Jan felt at that time was unnecessary. So we see it as our role to help you solve your problems so that you can concentrate on providing the right help and support to your child.

We will therefore undertake the service navigation work for you and find the information you need. We will then ensure we send the people you need to see directly to you. This removes any added pressure on you and should enable you to receive the right additional help and support that you need, both appropriately and quickly.

"We need to harness the power of brain plasticity for treating children and young people with brain injury, especially at the key ages of 0-3 and at ages 10-16"

Professor Bryan Kolb; Canada

"Taking brain injured children home causes high stress for families. Disjointed services exacerbate family stress levels."

Deborah Andrews; New Zealand

Child 1 - Aged 14 and 3 years after a traumatic brain injury

	2019	2020	Change
REASONING	301/800	426/800	+ 125
MEMORY	181/800	304/800	+ 123
ATTENTION	463/800	573/800	+ 110
COORDINATION	47/800	309/800	+ 262
PERCEPTION	158/800	374/800	+ 216

"Pediatric neuro-rehabilitation cannot be delivered in isolation. The needs of the child have to be looked at both holistically and within the context of the family unit. Parents need to be empowered to be parents in post-acute pediatric neuro-rehabilitation following brain injury"

The Children's Trust; United Kingdom

"My colleague was blown away by the tremendous work your organisation is doing for society." Social Worker

"Often families don't have the financial capability to access services. We need to rethink how we deliver neuro-rehab services to children and young people"

Vicki Anderson; Australia

"With support parents cope better so the child has a better recovery"

Andrea Palacio-Navarro; Spain

"Healthy teens are better at identifying strategies to deal with barriers. KIDS WITH ABI'S CAN'T!"

Shari Wade; USA

"NHS clinicians struggle with what intervention to prioritise in paediatric neuro-rehabilitation due to limited clinical time and the complexity of needs. Children, clinicians, parents and schools all have different neuro-rehabilitation priorities"

Recolo; United Kingdom

"When different organisations assess different aspects of a child's neuro-rehabilitation needs, everyone looks at things from a different perspective and have conflicting priorities"

Cathy Jonson; Rehab without Walls; United Kingdom.

OUR MISSION: To work to remove inequalities for children & young people affected by acquired brain injury; and provide effective support to their families that makes a real difference to their lives.