One of the key things we agreed at the outset as an organisation was NOT to signpost you to other organisations. Our Founder once found herself in a sign-posting loop, and at one point spoke to 33 people from 13 different organisations – and got nowhere because those individuals simply did not want to take on any responsibility for solving the problem.
We believe sign-posting simply drops the problem back onto you – when you are already under a significant amount of stress. So if you come to us for help – then we will help you. We think the frustration, disappointment and anger Jan felt at that time was unnecessary. So we see it as our role to help you solve your problems so that you can concentrate on providing the right help and support to your child.
We will therefore undertake the service navigation work for you and find the information you need. We will then ensure we send the people you need to see directly to you. This removes any added pressure on you and should enable you to receive the right additional help and support that you need, both appropriately and quickly.
"Too often children and young people with ABI are discharged from hospital without specialist brain support that they and their families need to overcome lifelong challenges"
"Case management for children and young people post acquired brain injury is 'pivotal' to successful outcomes and must be local"
"Participation in teen sports and normal activities leads to improved quality of life for children and young people post brain injury and helps to maximise outcomes"
"Different 'experts' involved in pediatric neuro-rehabilitation come from different organisational cultures which causes conflict and has a negative effect on the outcomes for the child."
"Pediatric neuro-rehabilitation cannot be delivered in isolation. The needs of the child have to be looked at both holistically and within the context of the family unit. Parents need to be empowered to be parents in post-acute pediatric neuro-rehabilitation following brain injury"
"Families and professionals spend time focusing on the negative aspects of ABI. Families need to be properly supported as 'resilience' is key to delivering successful outcomes for children and young people."
"NHS clinicians struggle with what intervention to priorities in pediatric neuro-rehabilitation due to limited clinical time and the complexity of needs. Children, clinicians, parents and schools all have different neuro-rehabilitation priorities"
"Our 10 year study proves that family-led home-based neuro-rehab interventions deliver the best outcomes for children and young people"
"New parenting support intervention showed how parenting style is related to executive dysfunction in children and young people post brain injury. With support parents cope better so the child has a better recovery"
"There are problems with getting people into neuro-rehab centres. Those most in need are often those most excluded due to a lack of socio-economic resources."