Advice & Information

One of the key things we agreed at the outset as an organisation was NOT to signpost you to other organisations. Our Founder once found herself in a sign-posting loop, and at one point spoke to 33 people from 13 different organisations – and got nowhere because those individuals simply did not want to take on any responsibility for solving the problem.

We believe sign-posting simply drops the problem back onto you – when you are already under a significant amount of stress. So if you come to us for help – then we will help you. We think the frustration, disappointment and anger Jan felt at that time was unnecessary. So we see it as our role to help you solve your problems so that you can concentrate on providing the right help and support to your child.

We will therefore undertake the service navigation work for you and find the information you need. We will then ensure we send the people you need to see directly to you. This removes any added pressure on you and should enable you to receive the right additional help and support that you need, both appropriately and quickly.

"Healthy teens are better at identifying strategies to deal with barriers. KIDS WITH ABI'S CAN'T!"

Shari Wade; USA

"NHS clinicians struggle with what intervention to prioritise in paediatric neuro-rehabilitation due to limited clinical time and the complexity of needs. Children, clinicians, parents and schools all have different neuro-rehabilitation priorities"

Recolo; United Kingdom

"Case management for children and young people post acquired brain injury is 'pivotal' to successful outcomes and must be local"

Deborah Andrews; New Zealand

"There are problems with getting people into neuro-rehab. Those most in need are often those most excluded due to a lack of socio-economic resources."

Vicki Anderson; Australia

"Too often children and young people with ABI are discharged from hospital without specialist brain support that they and their families need to overcome lifelong challenges"

Andrew Ross; former Chief Executive of the Children's Trust

"Positive and coordinated neuro-rehab interventions for children and young people is proven to bring health improvements; improve independence; reduces the need for sheltered living; decreases vulnerability; decreases drop-out rates in schools; decreases youth offending"

Eric Hermans; Netherlands

"We need to harness the power of brain plasticity for treating children and young people with brain injury, especially at the key ages of 0-3 and at ages 10-16"

Professor Bryan Kolb; Canada

"With support parents cope better so the child has a better recovery"

Andrea Palacio-Navarro; Spain

"Intensive and individualized approaches work. A one-size-fits-all approach doesn't. You have to make it relevant to the child."

Recolo; United Kingdom

"Strength-based family intervention after pediatric ABI is essential. Parents need to be equipped with the skills to cope and advocate for the child."

Caron Gan; Canada

OUR MISSION: To work to remove inequalities for children & young people affected by acquired brain injury; and provide effective support to their families that makes a real difference to their lives.