One of the key things we agreed at the outset as an organisation was NOT to signpost you to other organisations. Our Founder once found herself in a sign-posting loop, and at one point spoke to 33 people from 13 different organisations – and got nowhere because those individuals simply did not want to take on any responsibility for solving the problem.
We believe sign-posting simply drops the problem back onto you – when you are already under a significant amount of stress. So if you come to us for help – then we will help you. We think the frustration, disappointment and anger Jan felt at that time was unnecessary. So we see it as our role to help you solve your problems so that you can concentrate on providing the right help and support to your child.
We will therefore undertake the service navigation work for you and find the information you need. We will then ensure we send the people you need to see directly to you. This removes any added pressure on you and should enable you to receive the right additional help and support that you need, both appropriately and quickly.
"There are problems with getting people into neuro-rehab. Those most in need are often those most excluded due to a lack of socio-economic resources."
"We need to harness the power of brain plasticity for treating children and young people with brain injury, especially at the key ages of 0-3 and at ages 10-16"
"Brain development is complex and prolonged. Brain plasticity is influenced by a range of factors. Plasticity provides a base for neuro-rehab therapies and treatment"
"When someone has a brain injury, early access to local, specialist rehabilitation is crucial to ensure the maximum recovery and make significant savings to the state in health costs"
"Taking brain injured children home causes high stress for families. Disjointed services exacerbate family stress levels."
"Parent-supported interventions after paediatric ABI bring reductions to the cost to society"
"We are medical practitioners. The real experts are the parents. Over the last 35 years they have taught me everything I know"
"Children and young people have poor social competence post brain injury due to reduced cognition, executive functions, and emotional control. As a result they are twice as likely to have mental health issues in the future"
"Different 'experts' involved in paediatric neuro-rehabilitation come from different organisational cultures which causes conflict and has a negative effect on the outcomes for the child."