Advice & Information

One of the key things we agreed at the outset as an organisation was NOT to signpost you to other organisations. Our Founder once found herself in a sign-posting loop, and at one point spoke to 33 people from 13 different organisations – and got nowhere because those individuals simply did not want to take on any responsibility for solving the problem.

We believe sign-posting simply drops the problem back onto you – when you are already under a significant amount of stress. So if you come to us for help – then we will help you. We think the frustration, disappointment and anger Jan felt at that time was unnecessary. So we see it as our role to help you solve your problems so that you can concentrate on providing the right help and support to your child.

We will therefore undertake the service navigation work for you and find the information you need. We will then ensure we send the people you need to see directly to you. This removes any added pressure on you and should enable you to receive the right additional help and support that you need, both appropriately and quickly.

"More play increases brain plasticity and makes for better recovery post brain injury"

Professor Bryan Kolb; Canada

"There are problems with getting people into neuro-rehab. Those most in need are often those most excluded due to a lack of socio-economic resources."

Vicki Anderson; Australia

"We would like to see earlier identification and support for children with brain injuries to help them succeed in school."

Dalton Leong; Chief Executive of the Children's Trust

"We are medical practitioners. The real experts are the parents. Over the last 35 years they have taught me everything I know"

Lucia Braga; Brazil

"Pediatric neuro-rehabilitation cannot be delivered in isolation. The needs of the child have to be looked at both holistically and within the context of the family unit. Parents need to be empowered to be parents in post-acute pediatric neuro-rehabilitation following brain injury"

The Children's Trust; United Kingdom

"Strength-based family intervention after pediatric ABI is essential. Parents need to be equipped with the skills to cope and advocate for the child."

Caron Gan; Canada

"Often families don't have the financial capability to access services. We need to rethink how we deliver neuro-rehab services to children and young people"

Vicki Anderson; Australia

"Rehabilitation interventions can lead to positive outcomes for children and their families if delivered in the familiar home environment and applied to everyday situations"

Cerebra; United Kingdom

"Parent-supported interventions after paediatric ABI bring reductions to the cost to society"

Eric Hermans; Netherlands

"My colleague was blown away by the tremendous work your organisation is doing for society." Social Worker

OUR MISSION: To work to remove inequalities for children & young people affected by acquired brain injury; and provide effective support to their families that makes a real difference to their lives.