One of the key things we agreed at the outset as an organisation was NOT to signpost you to other organisations. Our Founder once found herself in a sign-posting loop, and at one point spoke to 33 people from 13 different organisations – and got nowhere because those individuals simply did not want to take on any responsibility for solving the problem.
We believe sign-posting simply drops the problem back onto you – when you are already under a significant amount of stress. So if you come to us for help – then we will help you. We think the frustration, disappointment and anger Jan felt at that time was unnecessary. So we see it as our role to help you solve your problems so that you can concentrate on providing the right help and support to your child.
We will therefore undertake the service navigation work for you and find the information you need. We will then ensure we send the people you need to see directly to you. This removes any added pressure on you and should enable you to receive the right additional help and support that you need, both appropriately and quickly.
"Case management for children and young people post acquired brain injury is 'pivotal' to successful outcomes and must be local"
"Pediatric neuro-rehabilitation cannot be delivered in isolation. The needs of the child have to be looked at both holistically and within the context of the family unit. Parents need to be empowered to be parents in post-acute pediatric neuro-rehabilitation following brain injury"
"We would like to see earlier identification and support for children with brain injuries to help them succeed in school."
"New parenting support intervention showed how parenting style is related to executive dysfunction in children and young people post brain injury. With support parents cope better so the child has a better recovery"
"Poor parenting styles affects children's behavior; increased their learning disability; and had a negative impact on emotions; anxiety; anger management post brain injury"
"NHS clinicians struggle with what intervention to priorities in pediatric neuro-rehabilitation due to limited clinical time and the complexity of needs. Children, clinicians, parents and schools all have different neuro-rehabilitation priorities"
"Taking brain injured children home causes high stress for families. Disjointed services exacerbate family stress levels."
"Children and young people have poor social competence post brain injury due to reduced cognition, executive functions, and emotional control. As a result they are twice as likely to have mental health issues in the future"
"Families and professionals spend time focusing on the negative aspects of ABI. Families need to be properly supported as 'resilience' is key to delivering successful outcomes for children and young people."
"Healthy teens are better at identifying strategies to deal with barriers. KIDS WITH ABI'S CAN'T!"