One of the key things we agreed at the outset as an organisation was NOT to signpost you to other organisations. Our Founder once found herself in a sign-posting loop, and at one point spoke to 33 people from 13 different organisations – and got nowhere because those individuals simply did not want to take on any responsibility for solving the problem.
We believe sign-posting simply drops the problem back onto you – when you are already under a significant amount of stress. So if you come to us for help – then we will help you. We think the frustration, disappointment and anger Jan felt at that time was unnecessary. So we see it as our role to help you solve your problems so that you can concentrate on providing the right help and support to your child.
We will therefore undertake the service navigation work for you and find the information you need. We will then ensure we send the people you need to see directly to you. This removes any added pressure on you and should enable you to receive the right additional help and support that you need, both appropriately and quickly.
"Case management for children and young people post acquired brain injury is 'pivotal' to successful outcomes and must be local"
"Participation in teen sports and normal activities leads to improved quality of life for children and young people post brain injury and helps to maximise outcomes"
"Taking brain injured children home causes high stress for families. Disjointed services exacerbate family stress levels."
"Pediatric neuro-rehabilitation cannot be delivered in isolation. The needs of the child have to be looked at both holistically and within the context of the family unit. Parents need to be empowered to be parents in post-acute pediatric neuro-rehabilitation following brain injury"
"Poor parenting styles affects children's behavior; increases their learning disability; and has a negative impact on emotions; anxiety; anger management post brain injury"
"We would like to see earlier identification and support for children with brain injuries to help them succeed in school."
"New parenting support intervention showed how parenting style is related to executive dysfunction in children and young people post brain injury. With support parents cope better so the child has a better recovery"
"When different organisations assess different aspects of a child's neuro-rehabilitation needs, everyone looks at things from a different perspective and highlight needs and conflicting priorities"
"We need to harness the power of brain plasticity for treating children and young people with brain injury. Stressful experiences alter brain development of a child, especially at the key ages of 0-3 and at ages 10-16"
"Often families don't have the financial capability to access services. We need to rethink how we deliver neuro-rehab services to children and young people"