Advocacy and Service Navigation

What is advocacy?

Advocacy services help people – particularly those who are most vulnerable in society – to:
a)  access information and services
b)  be involved in decisions about their lives
c)  explore choices and options
d)  defend and promote their rights and responsibilities
e)  speak out about issues that matter to them
(Source NHS England)

What is an advocate?

An advocacy service is provided by someone who is independent of social services and the NHS, and who isn’t part of your family or one of your friends.

An advocate’s role includes arguing your case when you need them to, and making sure the correct procedures are followed by your health and social care services. (Source NHS England)

Our advocacy service means we are there to represent your wishes without giving any personal opinions and without representing the views of any other organisation.

We can do things like:
a)  help you access information you need
b)  go with you to meetings or interviews in a supportive role
c)  write letters on your behalf or
d)  speak for you in situations where you don’t feel able to speak for yourself.


"Case management for children and young people post acquired brain injury is 'pivotal' to successful outcomes and must be local"
Deborah Andrews; New Zealand
"Positive and coordinated neuro-rehab interventions for children and young people is proven to bring health improvements; improve independence; reduces the need for sheltered living; decreases vulnerability; decreases drop-out rates in schools; decreases youth offending"
Eric Hermans; Netherlands
"Rehabilitation interventions can lead to positive outcomes for children and their families if delivered in the familiar home environment and applied to everyday situations"
Cerebra; United Kingdom
"NHS clinicians struggle with what intervention to prioritise in paediatric neuro-rehabilitation due to limited clinical time and the complexity of needs. Children, clinicians, parents and schools all have different neuro-rehabilitation priorities"
Recolo; United Kingdom
"We are medical practitioners. The real experts are the parents. Over the last 35 years they have taught me everything I know"
Lucia Braga; Brazil
"Our 10 year study proves that family-led home-based neuro-rehab interventions deliver the best outcomes for children and young people"
Lucia Braga; Brazil
"When someone has a brain injury, early access to local, specialist rehabilitation is crucial to ensure the maximum recovery and make significant savings to the state in health costs"
Headway; United Kingdom
"There are problems with getting people into neuro-rehab. Those most in need are often those most excluded due to a lack of socio-economic resources."
Vicki Anderson; Australia
"Parent-supported interventions after paediatric ABI bring reductions to the cost to society"
Eric Hermans; Netherlands
"When different organisations assess different aspects of a child's neuro-rehabilitation needs, everyone looks at things from a different perspective and have conflicting priorities"
Cathy Jonson; Rehab without Walls; United Kingdom.

OUR MISSION: To work to remove inequalities for children & young people affected by acquired brain injury; and provide effective support to their families that makes a real difference.

Council for Disabled Children Community Funded Charity Excellence Lottery Funded Youth Foundation BBC CiN