Advocacy and Service Navigation

What is advocacy?

Advocacy services help people – particularly those who are most vulnerable in society – to:
a)  access information and services
b)  be involved in decisions about their lives
c)  explore choices and options
d)  defend and promote their rights and responsibilities
e)  speak out about issues that matter to them
(Source NHS England)

What is an advocate?

An advocacy service is provided by someone who is independent of social services and the NHS, and who isn’t part of your family or one of your friends.

An advocate’s role includes arguing your case when you need them to, and making sure the correct procedures are followed by your health and social care services. (Source NHS England)

Our advocacy service means we are there to represent your wishes without giving any personal opinions and without representing the views of any other organisation.

We can do things like:
a)  help you access information you need
b)  go with you to meetings or interviews in a supportive role
c)  write letters on your behalf or
d)  speak for you in situations where you don’t feel able to speak for yourself.


"Families and professionals spend time focusing on the negative aspects of ABI. Families need to be properly supported as 'resilience' is key to delivering successful outcomes for children and young people."
Roberta De Pompeii; USA
"Thousands of children and young people living in the UK today without the help and support that can make a huge difference to their lives"
Dalton Leong; Chief Executive of the Children's Trust
"Healthy teens are better at identifying strategies to deal with barriers. KIDS WITH ABI'S CAN'T!"
Shari Wade; USA
"New parenting support intervention showed how parenting style is related to executive dysfunction in children and young people post brain injury. With support parents cope better so the child has a better recovery"
Andrea Palacio-Navarro; Spain
"Intensive and individualized approaches work. A one-size-fits-all approach doesn't. You have to make it relevant to the child."
Recolo; United Kingdom
"Participation in teen sports and normal activities leads to improved quality of life for children and young people post brain injury and helps to maximise outcomes"
Claire Willis; Australia
"There are problems with getting people into neuro-rehab centres. Those most in need are often those most excluded due to a lack of socio-economic resources."
Vicki Anderson; Australia
"Poor parenting styles affects children's behavior; increases their learning disability; and has a negative impact on emotions; anxiety; anger management post brain injury"
Andrea Palacio-Navarro; Spain
"We would like to see earlier identification and support for children with brain injuries to help them succeed in school."
Dalton Leong; Chief Executive of the Children's Trust
"Different 'experts' involved in pediatric neuro-rehabilitation come from different organisational cultures which causes conflict and has a negative effect on the outcomes for the child."
Barbara O'Connell; Ireland

OUR MISSION: To work to remove inequalities for children & young people affected by acquired brain injury; and provide effective support to their families that makes a real difference.

Council for Disabled Children Charity Excellence Lottery Funded