What is advocacy?
Advocacy services help people – particularly those who are most vulnerable in society – to:
a) access information and services
b) be involved in decisions about their lives
c) explore choices and options
d) defend and promote their rights and responsibilities
e) speak out about issues that matter to them
(Source NHS England)
What is an advocate?
An advocacy service is provided by someone who is independent of social services and the NHS, and who isn’t part of your family or one of your friends.
An advocate’s role includes arguing your case when you need them to, and making sure the correct procedures are followed by your health and social care services. (Source NHS England)
Our advocacy service means we are there to represent your wishes without giving any personal opinions and without representing the views of any other organisation.
We can do things like:
a) help you access information you need
b) go with you to meetings or interviews in a supportive role
c) write letters on your behalf or
d) speak for you in situations where you don’t feel able to speak for yourself.
"Different 'experts' involved in paediatric neuro-rehabilitation come from different organisational cultures which causes conflict and has a negative effect on the outcomes for the child."
"With support parents cope better so the child has a better recovery"
"Parent-supported interventions after paediatric ABI bring reductions to the cost to society"
"Positive and coordinated neuro-rehab interventions for children and young people is proven to bring health improvements; improve independence; reduces the need for sheltered living; decreases vulnerability; decreases drop-out rates in schools; decreases youth offending"
"Brain development is complex and prolonged. Brain plasticity is influenced by a range of factors. Plasticity provides a base for neuro-rehab therapies and treatment"
"Often families don't have the financial capability to access services. We need to rethink how we deliver neuro-rehab services to children and young people"
"Children and young people have poor social competence post brain injury due to reduced cognition, executive functions, and emotional control. As a result they are twice as likely to have mental health issues in the future"
"Case management for children and young people post acquired brain injury is 'pivotal' to successful outcomes and must be local"
"NHS clinicians struggle with what intervention to prioritise in paediatric neuro-rehabilitation due to limited clinical time and the complexity of needs. Children, clinicians, parents and schools all have different neuro-rehabilitation priorities"