Font size + -

Advocacy and Service Navigation

What is advocacy?

Advocacy services help people – particularly those who are most vulnerable in society – to:
a)  access information and services
b)  be involved in decisions about their lives
c)  explore choices and options
d)  defend and promote their rights and responsibilities
e)  speak out about issues that matter to them
(Source NHS England)

What is an advocate?

An advocacy service is provided by someone who is independent of social services and the NHS, and who isn’t part of your family or one of your friends.

An advocate’s role includes arguing your case when you need them to, and making sure the correct procedures are followed by your health and social care services. (Source NHS England)

Our advocacy service means we are there to represent your wishes without giving any personal opinions and without representing the views of any other organisation.

We can do things like:
a)  help you access information you need
b)  go with you to meetings or interviews in a supportive role
c)  write letters on your behalf or
d)  speak for you in situations where you don’t feel able to speak for yourself.


"Case management for children and young people post acquired brain injury is 'pivotal' to successful outcomes and must be local"
Deborah Andrews; New Zealand
"Healthy teens are better at identifying strategies to deal with barriers. KIDS WITH ABI'S CAN'T!"
Shari Wade; USA
"Taking brain injured children home causes high stress for families. Disjointed services exacerbate family stress levels."
Deborah Andrews; New Zealand
"New parenting support intervention showed how parenting style is related to executive dysfunction in children and young people post brain injury. With support parents cope better so the child has a better recovery"
Andrea Palacio-Navarro; Spain
"When someone has a brain injury, early access to local, specialist rehabilitation is crucial to ensure the maximum recovery and make significant savings to the state in health costs"
Headway; United Kingdom
"Positive and coordinated neuro-rehab interventions for children and young people is prove to bring health improvements; improve independence; a decline in the need for sheltered living; decreases vulnerability; decreases drop-out rates in schools; decreases youth offending"
Eric Hermans; Netherlands
"Brain development is complex and prolonged. Brain plasticity is influenced by a range of factors. Plasticity provides a base for neuro-rehab therapies and treatment"
Professor Bryan Kolb; Canada
"Poor parenting styles affects children's behavior; increased their learning disability; and had a negative impact on emotions; anxiety; anger management post brain injury"
Andrea Palacio-Navarro; Spain
"We would like to see earlier identification and support for children with brain injuries to help them succeed in school."
Dalton Leong; Chief Executive of the Children's Trust
"We are medical practitioners. The real experts are the parents. Over the last 35 years they have taught me everything I know"
Lucia Braga; Brazil

OUR MISSION: To work to remove (health) inequalities for children & young people affected by acquired brain injury; and provide effective support to their families that makes a real difference.

Council for Disabled Children Lottery Funded