Advocacy and Service Navigation

What is advocacy?

Advocacy services help people – particularly those who are most vulnerable in society – to:
a)  access information and services
b)  be involved in decisions about their lives
c)  explore choices and options
d)  defend and promote their rights and responsibilities
e)  speak out about issues that matter to them
(Source NHS England)

What is an advocate?

An advocacy service is provided by someone who is independent of social services and the NHS, and who isn’t part of your family or one of your friends.

An advocate’s role includes arguing your case when you need them to, and making sure the correct procedures are followed by your health and social care services. (Source NHS England)

Our advocacy service means we are there to represent your wishes without giving any personal opinions and without representing the views of any other organisation.

We can do things like:
a)  help you access information you need
b)  go with you to meetings or interviews in a supportive role
c)  write letters on your behalf or
d)  speak for you in situations where you don’t feel able to speak for yourself.


"More play increases brain plasticity and makes for better recovery post brain injury"
Professor Bryan Kolb; Canada
"We are medical practitioners. The real experts are the parents. Over the last 35 years they have taught me everything I know"
Lucia Braga; Brazil
"With support parents cope better so the child has a better recovery"
Andrea Palacio-Navarro; Spain
"We would like to see earlier identification and support for children with brain injuries to help them succeed in school."
Dalton Leong; Chief Executive of the Children's Trust
"Intensive and individualized approaches work. A one-size-fits-all approach doesn't. You have to make it relevant to the child."
Recolo; United Kingdom
"Pediatric neuro-rehabilitation cannot be delivered in isolation. The needs of the child have to be looked at both holistically and within the context of the family unit. Parents need to be empowered to be parents in post-acute pediatric neuro-rehabilitation following brain injury"
The Children's Trust; United Kingdom
"Taking brain injured children home causes high stress for families. Disjointed services exacerbate family stress levels."
Deborah Andrews; New Zealand
"Our 10 year study proves that family-led home-based neuro-rehab interventions deliver the best outcomes for children and young people"
Lucia Braga; Brazil
"When different organisations assess different aspects of a child's neuro-rehabilitation needs, everyone looks at things from a different perspective and have conflicting priorities"
Cathy Jonson; Rehab without Walls; United Kingdom.
"Rehabilitation interventions can lead to positive outcomes for children and their families if delivered in the familiar home environment and applied to everyday situations"
Cerebra; United Kingdom

OUR MISSION: To work to remove inequalities for children & young people affected by acquired brain injury; and provide effective support to their families that makes a real difference to their lives.

Council for Disabled Children Community Funded Charity Excellence Lottery Funded Youth Foundation BBC CiN