Font size + -

Advocacy and Service Navigation

What is advocacy?

Advocacy services help people – particularly those who are most vulnerable in society – to:
a)  access information and services
b)  be involved in decisions about their lives
c)  explore choices and options
d)  defend and promote their rights and responsibilities
e)  speak out about issues that matter to them
(Source NHS England)

What is an advocate?

An advocacy service is provided by someone who is independent of social services and the NHS, and who isn’t part of your family or one of your friends.

An advocate’s role includes arguing your case when you need them to, and making sure the correct procedures are followed by your health and social care services. (Source NHS England)

Our advocacy service means we are there to represent your wishes without giving any personal opinions and without representing the views of any other organisation.

We can do things like:
a)  help you access information you need
b)  go with you to meetings or interviews in a supportive role
c)  write letters on your behalf or
d)  speak for you in situations where you don’t feel able to speak for yourself.


"Restoration of anatomical functions and relationships must be done within 2 months of brain injury"
Eyzyon Eisentein; Israel
"NHS clinicians struggle with what intervention to priorities in pediatric neuro-rehabilitation due to limited clinical time and the complexity of needs. Children, clinicians, parents and schools all have different neuro-rehabilitation priorities"
Recolo; United Kingdom
"There are problems with getting people into neuro-rehab centres. Those most in need are often those most excluded due to a lack of socio-economic resources."
Vicki Anderson; Australia
"We are medical practitioners. The real experts are the parents. Over the last 35 years they have taught me everything I know"
Lucia Braga; Brazil
"We need to harness the power of brain plasticity for treating children and young people with brain injury. Stressful experiences alter brain development of a child, especially at the key ages of 0-3 and at ages 10-16"
Professor Bryan Kolb; Canada
"Taking brain injured children home causes high stress for families. Disjointed services exacerbate family stress levels."
Deborah Andrews; New Zealand
"Brain development is complex and prolonged. Brain plasticity is influenced by a range of factors. Plasticity provides a base for neuro-rehab therapies and treatment"
Professor Bryan Kolb; Canada
"Families and professionals spend time focusing on the negative aspects of ABI. Families need to be properly supported as 'resilience' is key to delivering successful outcomes for children and young people."
Roberta De Pompeii; USA
"Thousands of children and young people living in the UK today without the help and support that can make a huge difference to their lives"
Dalton Leong; Chief Executive of the Children's Trust
"Parent-supported interventions following pediatric ABI bring reductions to the cost to society"
Eric Hermans; Netherlands

OUR MISSION: To work to remove (health) inequalities for children & young people affected by acquired brain injury; and provide effective support to their families that makes a real difference.

Council for Disabled Children Lottery Funded