Our Outcomes

The support we provide to brain injured children and young people is unique because we work to understand the child or young person’s changed and often hidden needs following their brain injury.    Their initial baseline cognitive assessment looks at a minimum of 17 key skills across five domains, that are essential for learning and life.  We also gather lots of other essential information and reports, which is important, but very time consuming work.

Together these provide a complete picture of the individual’s hidden difficulties; many of which have not been identified.  This is then used to compile a baseline from which to measure progress.  After agreeing some goals with the individual and their family, we then formulate a plan of stimulating activities and fun tasks aimed at helping them to achieve their long term and short term goals.    

Our non-clinical work addresses a range of physical, communication, cognitive, emotional and behavioural issues to facilitate lasting improvements for brain injured children.

Why is this needed?

None of the children and young people we work with have received any meaningful Cognitive Rehabilitation Therapy or support.  Despite receiving essential 1-1 SEN interventions at school, these kids remained years behind their peers and the SEN support was not aiding their ongoing recovery; because it is not designed to.   Research and the lived experience of families shows that for many, this will continue to have a negative life-long impact.   Our Children and Young People’s Service aims to reverse these trends.

What difference do we make?

The following children and young people have all sustained an acquired brain injury.  However they all have different causes; levels of severity; age at the time of injury; effects and life impacts.

Each baseline score shows the child or young persons level of functioning before we started working with them. 

The tables shown below indicate that:

  • from their baseline assessment: brain injured children and young people do not recover well post brain injury, with just SEN support, and
  • from their outcomes: with appropriate support they have the potential to improve their cognitive skills. 

AGED 9  and 4 years after a Non-Traumatic Brain Injury
2019 Baseline Functioning 2020 IMPROVEMENT
REASONING 187 / 800 307 / 800   +  120
MEMORY 76 / 800 311 / 800   +  235
ATTENTION 178/800 334  / 800   +  156
COORDINATION 200 /800 502 / 800    +  302
PERCEPTION 81 / 800 494 / 800   +  413

 

AGED 18 and 3 years after a severe Traumatic Brain Injury
2019 Baseline Functioning 2020 IMPROVEMENT
REASONING 301 / 800 426 / 800   +  125
MEMORY 181 / 800 304 / 800   +  123
ATTENTION 463 / 800 573 / 800   +  110
COORDINATION 47 / 800 309 / 800   +  262
PERCEPTION 158 / 800 374 / 800   +  216

 

Aged 22 and 10 years after 2 X Traumatic Brain Injuries
2019 Baseline Functioning 2020 IMPROVEMENT
REASONING 207 / 800 208 / 800   + 1
MEMORY 57 / 800 125 / 800   + 68
ATTENTION 441 / 800 601 / 800   + 160
COORDINATION 176 / 800 214 / 800   + 38
PERCEPTION 312 / 800 403 / 800   + 91

Future needs

Following an acquired brain injury, a brain does not work as efficiently as it did prior to the injury.  Progress can therefore be slow.  Despite these children and young people making progress, they all still have a long way to go in terms of their ongoing development and recovery when compared to their peers.  Also many of our children come from disadvantaged backgrounds which research shows, places them at an even higher risk of poorer long-term outcomes.  We will therefore continue to work with these children and young people to ensure they make the best possible recovery and achieve their full potential. 

We invest in brain injured children and young people so that they will have the best chance of a bright future!


"More play increases brain plasticity and makes for better recovery post brain injury"
Professor Bryan Kolb; Canada
"There are problems with getting people into neuro-rehab centres. Those most in need are often those most excluded due to a lack of socio-economic resources."
Vicki Anderson; Australia
"New parenting support intervention showed how parenting style is related to executive dysfunction in children and young people post brain injury. With support parents cope better so the child has a better recovery"
Andrea Palacio-Navarro; Spain
"We are medical practitioners. The real experts are the parents. Over the last 35 years they have taught me everything I know"
Lucia Braga; Brazil
"Too often children and young people with ABI are discharged from hospital without specialist brain support that they and their families need to overcome lifelong challenges"
Andrew Ross; former Chief Executive of the Children's Trust
"Case management for children and young people post acquired brain injury is 'pivotal' to successful outcomes and must be local"
Deborah Andrews; New Zealand
"Parent-supported interventions after pediatric ABI bring reductions to the cost to society"
Eric Hermans; Netherlands
"Different 'experts' involved in pediatric neuro-rehabilitation come from different organisational cultures which causes conflict and has a negative effect on the outcomes for the child."
Barbara O'Connell; Ireland
"Healthy teens are better at identifying strategies to deal with barriers. KIDS WITH ABI'S CAN'T!"
Shari Wade; USA
"Our 10 year study proves that family-led home-based neuro-rehab interventions deliver the best outcomes for children and young people"
Lucia Braga; Brazil

OUR MISSION: To work to remove inequalities for children & young people affected by acquired brain injury; and provide effective support to their families that makes a real difference.

Council for Disabled Children Community Funded Charity Excellence Lottery Funded