The journey towards neurological recovery and the rehabilitation process is often a lengthy and erratic one. No two journeys are the same. Often the process involves a mix of small improvements, significant advances, stalling (plateau-ing) and/or backward steps; which for the family can be difficult to deal with. When combined with the emotional trauma you have already faced, this can cause a huge ripple effect across the family unit. For example you may find you are unable to offer other siblings the help and support that they need; or you may find it difficult to keep up with the housework.
Whilst other family members may help out in the beginning, there often comes a point when this has to end. This often has a negative impact on the psychological and emotional well- being of both parents and other family members. In turn this can affect normal household routines and it can become easy to ‘let things slip’; which then further exacerbates family pressures and stress.
At MATRIX we aim to support families and minimise family stress and tensions. Our volunteer scheme will therefore offer practical help and support around the home to help you keep on top of other day-to-day tasks, should you feel this is necessary. Speak to your family support team to discuss any further needs you may have and how we can help.
"Different 'experts' involved in paediatric neuro-rehabilitation come from different organisational cultures which causes conflict and has a negative effect on the outcomes for the child."
"Healthy teens are better at identifying strategies to deal with barriers. KIDS WITH ABI'S CAN'T!"
"More play increases brain plasticity and makes for better recovery post brain injury"
"Pediatric neuro-rehabilitation cannot be delivered in isolation. The needs of the child have to be looked at both holistically and within the context of the family unit. Parents need to be empowered to be parents in post-acute pediatric neuro-rehabilitation following brain injury"
"Taking brain injured children home causes high stress for families. Disjointed services exacerbate family stress levels."
"Thousands of children and young people living in the UK today without the help and support that can make a huge difference to their lives"
"Intensive and individualized approaches work. A one-size-fits-all approach doesn't. You have to make it relevant to the child."
"Too often children and young people with ABI are discharged from hospital without specialist brain support that they and their families need to overcome lifelong challenges"
"We would like to see earlier identification and support for children with brain injuries to help them succeed in school."