The journey towards neurological recovery and the rehabilitation process is often a lengthy and erratic one. No two journeys are the same. Often the process involves a mix of small improvements, significant advances, stalling (plateau-ing) and/or backward steps; which for the family can be difficult to deal with. When combined with the emotional trauma you have already faced, this can cause a huge ripple effect across the family unit. For example you may find you are unable to offer other siblings the help and support that they need; or you may find it difficult to keep up with the housework.
Whilst other family members may help out in the beginning, there often comes a point when this has to end. This often has a negative impact on the psychological and emotional well- being of both parents and other family members. In turn this can affect normal household routines and it can become easy to ‘let things slip’; which then further exacerbates family pressures and stress.
At MATRIX we aim to support families and minimise family stress and tensions. Our volunteer scheme will therefore offer practical help and support around the home to help you keep on top of other day-to-day tasks, should you feel this is necessary. Speak to your family support team to discuss any further needs you may have and how we can help.
"There are problems with getting people into neuro-rehab centres. Those most in need are often those most excluded due to a lack of socio-economic resources."
"Poor parenting styles affects children's behavior; increases their learning disability; and has a negative impact on emotions; anxiety; anger management post brain injury"
"Rehabilitation interventions can lead to positive outcomes for children and their families if delivered in the familiar home environment and applied to everyday situations"
"Thousands of children and young people living in the UK today without the help and support that can make a huge difference to their lives"
"Different 'experts' involved in pediatric neuro-rehabilitation come from different organisational cultures which causes conflict and has a negative effect on the outcomes for the child."
"Positive and coordinated neuro-rehab interventions for children and young people is proven to bring health improvements; improve independence; reduces the need for sheltered living; decreases vulnerability; decreases drop-out rates in schools; decreases youth offending"
"Case management for children and young people post acquired brain injury is 'pivotal' to successful outcomes and must be local"
"When different organisations assess different aspects of a child's neuro-rehabilitation needs, everyone looks at things from a different perspective and highlight needs and conflicting priorities"
"We would like to see earlier identification and support for children with brain injuries to help them succeed in school."
"Too often children and young people with ABI are discharged from hospital without specialist brain support that they and their families need to overcome lifelong challenges"