The journey towards neurological recovery and the rehabilitation process is often a lengthy and erratic one. No two journeys are the same. Often the process involves a mix of small improvements, significant advances, stalling (plateau-ing) and/or backward steps; which for the family can be difficult to deal with. When combined with the emotional trauma you have already faced, this can cause a huge ripple effect across the family unit. For example you may find you are unable to offer other siblings the help and support that they need; or you may find it difficult to keep up with the housework.
Whilst other family members may help out in the beginning, there often comes a point when this has to end. This often has a negative impact on the psychological and emotional well- being of both parents and other family members. In turn this can affect normal household routines and it can become easy to ‘let things slip’; which then further exacerbates family pressures and stress.
At MATRIX we aim to support families and minimise family stress and tensions. Our volunteer scheme will therefore offer practical help and support around the home to help you keep on top of other day-to-day tasks, should you feel this is necessary. Speak to your family support team to discuss any further needs you may have and how we can help.
"Brain development is complex and prolonged. Brain plasticity is influenced by a range of factors. Plasticity provides a base for neuro-rehab therapies and treatment"
"Too often children and young people with ABI are discharged from hospital without specialist brain support that they and their families need to overcome lifelong challenges"
"Rehabilitation interventions can lead to positive outcomes for children and their families if delivered in the familiar home environment and applied to everyday situations"
"Often families don't have the financial capability to access services. We need to rethink how we delivery neuro-rehab services to children and young people"
"Intensive and individualized approaches work. A one-size-fits-all approach doesn't. You have to make it relevant to the child."
"Different 'experts' involved in pediatric neuro-rehabilitation come from different organisational cultures which causes conflict and has a negative effect on the outcomes for the child."
"There are problems with getting people into neuro-rehab centres. Those most in need are often those most excluded due to a lack of socio-economic resources."
"Case management for children and young people post acquired brain injury is 'pivotal' to successful outcomes and must be local"
"Parent-supported interventions following pediatric ABI bring reductions to the cost to society"
"Participation in teen sports and normal activities leads to improved quality of life for children and young people post brain injury and helps to maximise outcomes"