The journey towards neurological recovery and the rehabilitation process is often a lengthy and erratic one. No two journeys are the same. Often the process involves a mix of small improvements, significant advances, stalling (plateau-ing) and/or backward steps; which for the family can be difficult to deal with. When combined with the emotional trauma you have already faced, this can cause a huge ripple effect across the family unit. For example you may find you are unable to offer other siblings the help and support that they need; or you may find it difficult to keep up with the housework.
Whilst other family members may help out in the beginning, there often comes a point when this has to end. This often has a negative impact on the psychological and emotional well- being of both parents and other family members. In turn this can affect normal household routines and it can become easy to ‘let things slip’; which then further exacerbates family pressures and stress.
At MATRIX we aim to support families and minimise family stress and tensions. Our volunteer scheme will therefore offer practical help and support around the home to help you keep on top of other day-to-day tasks, should you feel this is necessary. Speak to your family support team to discuss any further needs you may have and how we can help.
"Participation in teen sports and normal activities leads to improved quality of life for children and young people post brain injury and helps to maximise outcomes"
"We need to harness the power of brain plasticity for treating children and young people with brain injury. Stressful experiences alter brain development of a child, especially at the key ages of 0-3 and at ages 10-16"
"Families and professionals spend time focusing on the negative aspects of ABI. Families need to be properly supported as 'resilience' is key to delivering successful outcomes for children and young people."
"There are problems with getting people into neuro-rehab centres. Those most in need are often those most excluded due to a lack of socio-economic resources."
"NHS clinicians struggle with what intervention to priorities in pediatric neuro-rehabilitation due to limited clinical time and the complexity of needs. Children, clinicians, parents and schools all have different neuro-rehabilitation priorities"
"Taking brain injured children home causes high stress for families. Disjointed services exacerbate family stress levels."
"Restoration of anatomical functions and relationships must be done within 2 months of brain injury"
"We would like to see earlier identification and support for children with brain injuries to help them succeed in school."
"Our 10 year study proves that family-led home-based neuro-rehab interventions deliver the best outcomes for children and young people"
"Case management for children and young people post acquired brain injury is 'pivotal' to successful outcomes and must be local"