The journey towards neurological recovery and the rehabilitation process is often a lengthy and erratic one. No two journeys are the same. Often the process involves a mix of small improvements, significant advances, stalling (plateau-ing) and/or backward steps; which for the family can be difficult to deal with. When combined with the emotional trauma you have already faced, this can cause a huge ripple effect across the family unit. For example you may find you are unable to offer other siblings the help and support that they need; or you may find it difficult to keep up with the housework.
Whilst other family members may help out in the beginning, there often comes a point when this has to end. This often has a negative impact on the psychological and emotional well- being of both parents and other family members. In turn this can affect normal household routines and it can become easy to ‘let things slip’; which then further exacerbates family pressures and stress.
At MATRIX we aim to support families and minimise family stress and tensions. Our volunteer scheme will therefore offer practical help and support around the home to help you keep on top of other day-to-day tasks, should you feel this is necessary. Speak to your family support team to discuss any further needs you may have and how we can help.
"Rehabilitation interventions can lead to positive outcomes for children and their families if delivered in the familiar home environment and applied to everyday situations"
"Pediatric neuro-rehabilitation cannot be delivered in isolation. The needs of the child have to be looked at both holistically and within the context of the family unit. Parents need to be empowered to be parents in post-acute pediatric neuro-rehabilitation following brain injury"
"When someone has a brain injury, early access to local, specialist rehabilitation is crucial to ensure the maximum recovery and make significant savings to the state in health costs"
"Different 'experts' involved in pediatric neuro-rehabilitation come from different organisational cultures which causes conflict and has a negative effect on the outcomes for the child."
"There are problems with getting people into neuro-rehab centres. Those most in need are often those most excluded due to a lack of socio-economic resources."
"Often families don't have the financial capability to access services. We need to rethink how we delivery neuro-rehab services to children and young people"
"Our 10 year study proves that family-led home-based neuro-rehab interventions deliver the best outcomes for children and young people"
"Poor parenting styles affects children's behavior; increased their learning disability; and had a negative impact on emotions; anxiety; anger management post brain injury"
"Taking brain injured children home causes high stress for families. Disjointed services exacerbate family stress levels."
"Thousands of children and young people living in the UK today without the help and support that can make a huge difference to their lives"