Reports

Whilst we do not directly undertake research, as part of our service delivery we gather a lot of insightful information. With the permission of our families, we collate this information into reports to help raise awareness of the real life issues that brain injured children and their families face. Our reports have been shared with MP’s and Multi Agency Partnership boards to try to influence Government Policy and key local leaders. Others have followed our lead in similar ways.

Below are listed some of the report previously disseminated to key players. They make shocking reading. Over time, we will add any more reports that we produce, to this page.

Enough Full Report written in 2017

Enough Report MP’s Briefing Note

"Parent-supported interventions after paediatric ABI bring reductions to the cost to society"

Eric Hermans; Netherlands

"When different organisations assess different aspects of a child's neuro-rehabilitation needs, everyone looks at things from a different perspective and have conflicting priorities"

Cathy Jonson; Rehab without Walls; United Kingdom.

"Case management for children and young people post acquired brain injury is 'pivotal' to successful outcomes and must be local"

Deborah Andrews; New Zealand

"Our 10 year study proves that family-led home-based neuro-rehab interventions deliver the best outcomes for children and young people"

Lucia Braga; Brazil

"Thousands of children and young people living in the UK today without the help and support that can make a huge difference to their lives"

Dalton Leong; Chief Executive of the Children's Trust

"Brain development is complex and prolonged. Brain plasticity is influenced by a range of factors. Plasticity provides a base for neuro-rehab therapies and treatment"

Professor Bryan Kolb; Canada

"Pediatric neuro-rehabilitation cannot be delivered in isolation. The needs of the child have to be looked at both holistically and within the context of the family unit. Parents need to be empowered to be parents in post-acute pediatric neuro-rehabilitation following brain injury"

The Children's Trust; United Kingdom

"Too often children and young people with ABI are discharged from hospital without specialist brain support that they and their families need to overcome lifelong challenges"

Andrew Ross; former Chief Executive of the Children's Trust

"My colleague was blown away by the tremendous work your organisation is doing for society." Social Worker

"NHS clinicians struggle with what intervention to prioritise in paediatric neuro-rehabilitation due to limited clinical time and the complexity of needs. Children, clinicians, parents and schools all have different neuro-rehabilitation priorities"

Recolo; United Kingdom

OUR MISSION: To work to remove inequalities for children & young people affected by acquired brain injury; and provide effective support to their families that makes a real difference to their lives.