Reports

Whilst we do not directly undertake research, as part of our service delivery we gather a lot of insightful information.  With the permission of our families, we collate this information into reports to help raise awareness of the real life issues that brain injured children and their families face.  Our reports have been shared with MP’s and Multi Agency Partnership boards to try to influence Government Policy and key local leaders.  Others have followed our lead in similar ways.

Below are listed some of the report previously disseminated to key players.  They make shocking reading.   Over time, we will add any more reports that we produce, to this page.

Enough Full Report  written in 2017

Enough Report MP’s Briefing Note


"Often families don't have the financial capability to access services. We need to rethink how we deliver neuro-rehab services to children and young people"
Vicki Anderson; Australia
"There are problems with getting people into neuro-rehab. Those most in need are often those most excluded due to a lack of socio-economic resources."
Vicki Anderson; Australia
"Positive and coordinated neuro-rehab interventions for children and young people is proven to bring health improvements; improve independence; reduces the need for sheltered living; decreases vulnerability; decreases drop-out rates in schools; decreases youth offending"
Eric Hermans; Netherlands
"When someone has a brain injury, early access to local, specialist rehabilitation is crucial to ensure the maximum recovery and make significant savings to the state in health costs"
Headway; United Kingdom
"Different 'experts' involved in paediatric neuro-rehabilitation come from different organisational cultures which causes conflict and has a negative effect on the outcomes for the child."
Barbara O'Connell; Ireland
"We would like to see earlier identification and support for children with brain injuries to help them succeed in school."
Dalton Leong; Chief Executive of the Children's Trust
"Intensive and individualized approaches work. A one-size-fits-all approach doesn't. You have to make it relevant to the child."
Recolo; United Kingdom
"We are medical practitioners. The real experts are the parents. Over the last 35 years they have taught me everything I know"
Lucia Braga; Brazil
Child 1 - Aged 14 and 3 years after a traumatic brain injury
2019 2020 Change
REASONING 301/800 426/800   +  125
MEMORY 181/800 304/800   +  123
ATTENTION 463/800 573/800   +  110
COORDINATION 47/800 309/800   +  262
PERCEPTION 158/800 374/800   +  216
"Strength-based family intervention after pediatric ABI is essential. Parents need to be equipped with the skills to cope and advocate for the child."
Caron Gan; Canada

OUR MISSION: To work to remove inequalities for children & young people affected by acquired brain injury; and provide effective support to their families that makes a real difference.

Council for Disabled Children Community Funded Charity Excellence Lottery Funded Youth Foundation BBC CiN