Reports

Whilst we do not directly undertake research, as part of our service delivery we gather a lot of insightful information. With the permission of our families, we collate this information into reports to help raise awareness of the real life issues that brain injured children and their families face. Our reports have been shared with MP’s and Multi Agency Partnership boards to try to influence Government Policy and key local leaders. Others have followed our lead in similar ways.

Below are listed some of the report previously disseminated to key players. They make shocking reading. Over time, we will add any more reports that we produce, to this page.

Enough Full Report written in 2017

Enough Report MP’s Briefing Note

"With support parents cope better so the child has a better recovery"

Andrea Palacio-Navarro; Spain

"We are medical practitioners. The real experts are the parents. Over the last 35 years they have taught me everything I know"

Lucia Braga; Brazil

"Brain development is complex and prolonged. Brain plasticity is influenced by a range of factors. Plasticity provides a base for neuro-rehab therapies and treatment"

Professor Bryan Kolb; Canada

"Parent-supported interventions after paediatric ABI bring reductions to the cost to society"

Eric Hermans; Netherlands

"When someone has a brain injury, early access to local, specialist rehabilitation is crucial to ensure the maximum recovery and make significant savings to the state in health costs"

Headway; United Kingdom

"Rehabilitation interventions can lead to positive outcomes for children and their families if delivered in the familiar home environment and applied to everyday situations"

Cerebra; United Kingdom

"When different organisations assess different aspects of a child's neuro-rehabilitation needs, everyone looks at things from a different perspective and have conflicting priorities"

Cathy Jonson; Rehab without Walls; United Kingdom.

"Healthy teens are better at identifying strategies to deal with barriers. KIDS WITH ABI'S CAN'T!"

Shari Wade; USA

"Intensive and individualized approaches work. A one-size-fits-all approach doesn't. You have to make it relevant to the child."

Recolo; United Kingdom

"Pediatric neuro-rehabilitation cannot be delivered in isolation. The needs of the child have to be looked at both holistically and within the context of the family unit. Parents need to be empowered to be parents in post-acute pediatric neuro-rehabilitation following brain injury"

The Children's Trust; United Kingdom

OUR MISSION: To work to remove inequalities for children & young people affected by acquired brain injury; and provide effective support to their families that makes a real difference to their lives.