Reports

Whilst we do not directly undertake research, as part of our service delivery we gather a lot of insightful information.  With the permission of our families, we collate this information into reports to help raise awareness of the real life issues that brain injured children and their families face.  Our reports have been shared with MP’s and Multi Agency Partnership boards to try to influence Government Policy and key local leaders.  Others have followed our lead in similar ways.

Below are listed some of the report previously disseminated to key players.  They make shocking reading.   Over time, we will add any more reports that we produce, to this page.

Enough Full Report  written in 2017

Enough Report MP’s Briefing Note


"Case management for children and young people post acquired brain injury is 'pivotal' to successful outcomes and must be local"
Deborah Andrews; New Zealand
Child 1 - Aged 14 and 3 years after a traumatic brain injury
2019 2020 Change
REASONING 301/800 426/800   +  125
MEMORY 181/800 304/800   +  123
ATTENTION 463/800 573/800   +  110
COORDINATION 47/800 309/800   +  262
PERCEPTION 158/800 374/800   +  216
"Brain development is complex and prolonged. Brain plasticity is influenced by a range of factors. Plasticity provides a base for neuro-rehab therapies and treatment"
Professor Bryan Kolb; Canada
"We need to harness the power of brain plasticity for treating children and young people with brain injury, especially at the key ages of 0-3 and at ages 10-16"
Professor Bryan Kolb; Canada
"Parent-supported interventions after paediatric ABI bring reductions to the cost to society"
Eric Hermans; Netherlands
"Taking brain injured children home causes high stress for families. Disjointed services exacerbate family stress levels."
Deborah Andrews; New Zealand
"Pediatric neuro-rehabilitation cannot be delivered in isolation. The needs of the child have to be looked at both holistically and within the context of the family unit. Parents need to be empowered to be parents in post-acute pediatric neuro-rehabilitation following brain injury"
The Children's Trust; United Kingdom
"More play increases brain plasticity and makes for better recovery post brain injury"
Professor Bryan Kolb; Canada
"Different 'experts' involved in paediatric neuro-rehabilitation come from different organisational cultures which causes conflict and has a negative effect on the outcomes for the child."
Barbara O'Connell; Ireland
This is the best support plan we have ever seen that will deliver the best outcomes for this young person.  The costings are 'spot on' and realistic'.  Direct Payments Team.  

OUR MISSION: To work to remove inequalities for children & young people affected by acquired brain injury; and provide effective support to their families that makes a real difference to their lives.

Council for Disabled Children Community Funded Charity Excellence Lottery Funded Youth Foundation BBC CiN