Whilst we do not directly undertake research, as part of our service delivery we gather a lot of insightful information. With the permission of our families, we collate this information into reports to help raise awareness of the real life issues that brain injured children and their families face. Our reports have been shared with MP’s and Multi Agency Partnership boards to try to influence Government Policy and key local leaders. Others have followed our lead in similar ways.
Below are listed some of the report previously disseminated to key players. They make shocking reading. Over time, we will add any more reports that we produce, to this page.
Enough Full Report written in 2017
"Parent-supported interventions after pediatric ABI bring reductions to the cost to society"
"Families and professionals spend time focusing on the negative aspects of ABI. Families need to be properly supported as 'resilience' is key to delivering successful outcomes for children and young people."
"We are medical practitioners. The real experts are the parents. Over the last 35 years they have taught me everything I know"
"Taking brain injured children home causes high stress for families. Disjointed services exacerbate family stress levels."
"When different organisations assess different aspects of a child's neuro-rehabilitation needs, everyone looks at things from a different perspective and highlight needs and conflicting priorities"
"We would like to see earlier identification and support for children with brain injuries to help them succeed in school."
"There are problems with getting people into neuro-rehab centres. Those most in need are often those most excluded due to a lack of socio-economic resources."
"New parenting support intervention showed how parenting style is related to executive dysfunction in children and young people post brain injury. With support parents cope better so the child has a better recovery"
"More play increases brain plasticity and makes for better recovery post brain injury"
"Intensive and individualized approaches work. A one-size-fits-all approach doesn't. You have to make it relevant to the child."