Whilst we do not directly undertake research, as part of our service delivery we gather a lot of insightful information. With the permission of our families, we collate this information into reports to help raise awareness of the real life issues that brain injured children and their families face. Our reports have been shared with MP’s and Multi Agency Partnership boards to try to influence Government Policy and key local leaders. Others have followed our lead in similar ways.
Below are listed some of the report previously disseminated to key players. They make shocking reading. Over time, we will add any more reports that we produce, to this page.
Enough Full Report written in 2017
"We would like to see earlier identification and support for children with brain injuries to help them succeed in school."
"With support parents cope better so the child has a better recovery"
"Strength-based family intervention after pediatric ABI is essential. Parents need to be equipped with the skills to cope and advocate for the child."
"Positive and coordinated neuro-rehab interventions for children and young people is proven to bring health improvements; improve independence; reduces the need for sheltered living; decreases vulnerability; decreases drop-out rates in schools; decreases youth offending"
"There are problems with getting people into neuro-rehab. Those most in need are often those most excluded due to a lack of socio-economic resources."
"Families need to be properly supported as 'resilience' is key to delivering successful outcomes for children and young people."
"We are medical practitioners. The real experts are the parents. Over the last 35 years they have taught me everything I know"
"Taking brain injured children home causes high stress for families. Disjointed services exacerbate family stress levels."
"Parent-supported interventions after paediatric ABI bring reductions to the cost to society"