Whilst we do not directly undertake research, as part of our service delivery we gather a lot of insightful information. With the permission of our families, we collate this information into reports to help raise awareness of the real life issues that brain injured children and their families face. Our reports have been shared with MP’s and Multi Agency Partnership boards to try to influence Government Policy and key local leaders. Others have followed our lead in similar ways.
Below are listed some of the report previously disseminated to key players. They make shocking reading. Over time, we will add any more reports that we produce, to this page.
Enough Full Report written in 2017
"Rehabilitation interventions can lead to positive outcomes for children and their families if delivered in the familiar home environment and applied to everyday situations"
"Parent-supported interventions after paediatric ABI bring reductions to the cost to society"
"Often families don't have the financial capability to access services. We need to rethink how we deliver neuro-rehab services to children and young people"
"Brain development is complex and prolonged. Brain plasticity is influenced by a range of factors. Plasticity provides a base for neuro-rehab therapies and treatment"
"We are medical practitioners. The real experts are the parents. Over the last 35 years they have taught me everything I know"
"Families need to be properly supported as 'resilience' is key to delivering successful outcomes for children and young people."
"There are problems with getting people into neuro-rehab. Those most in need are often those most excluded due to a lack of socio-economic resources."
"When different organisations assess different aspects of a child's neuro-rehabilitation needs, everyone looks at things from a different perspective and have conflicting priorities"
"With support parents cope better so the child has a better recovery"
"Intensive and individualized approaches work. A one-size-fits-all approach doesn't. You have to make it relevant to the child."