Whilst we do not directly undertake research, as part of our service delivery we gather a lot of insightful information. With the permission of our families, we collate this information into reports to help raise awareness of the real life issues that brain injured children and their families face. Our reports have been shared with MP’s and Multi Agency Partnership boards to try to influence Government Policy and key local leaders. Others have followed our lead in similar ways.
Below are listed some of the report previously disseminated to key players. They make shocking reading. Over time, we will add any more reports that we produce, to this page.
Enough Full Report written in 2017
"Often families don't have the financial capability to access services. We need to rethink how we deliver neuro-rehab services to children and young people"
"Brain development is complex and prolonged. Brain plasticity is influenced by a range of factors. Plasticity provides a base for neuro-rehab therapies and treatment"
"Parent-supported interventions after paediatric ABI bring reductions to the cost to society"
"Intensive and individualized approaches work. A one-size-fits-all approach doesn't. You have to make it relevant to the child."
"Our 10 year study proves that family-led home-based neuro-rehab interventions deliver the best outcomes for children and young people"
"Pediatric neuro-rehabilitation cannot be delivered in isolation. The needs of the child have to be looked at both holistically and within the context of the family unit. Parents need to be empowered to be parents in post-acute pediatric neuro-rehabilitation following brain injury"
"Case management for children and young people post acquired brain injury is 'pivotal' to successful outcomes and must be local"
"Thousands of children and young people living in the UK today without the help and support that can make a huge difference to their lives"
"Participation in teen sports and normal activities leads to improved quality of life for children and young people post brain injury and helps to maximise outcomes"