Reports

Whilst we do not directly undertake research, as part of our service delivery we gather a lot of insightful information.  With the permission of our families, we collate this information into reports to help raise awareness of the real life issues that brain injured children and their families face.  Our reports have been shared with MP’s and Multi Agency Partnership boards to try to influence Government Policy and key local leaders.  Others have followed our lead in similar ways.

Below are listed some of the report previously disseminated to key players.  They make shocking reading.   Over time, we will add any more reports that we produce, to this page.

Enough Full Report  written in 2017

Enough Report MP’s Briefing Note


"Pediatric neuro-rehabilitation cannot be delivered in isolation. The needs of the child have to be looked at both holistically and within the context of the family unit. Parents need to be empowered to be parents in post-acute pediatric neuro-rehabilitation following brain injury"
The Children's Trust; United Kingdom
Child 1 - Aged 14 and 3 years after a traumatic brain injury
2019 2020 Change
REASONING 301/800 426/800   +  125
MEMORY 181/800 304/800   +  123
ATTENTION 463/800 573/800   +  110
COORDINATION 47/800 309/800   +  262
PERCEPTION 158/800 374/800   +  216
"Brain development is complex and prolonged. Brain plasticity is influenced by a range of factors. Plasticity provides a base for neuro-rehab therapies and treatment"
Professor Bryan Kolb; Canada
"Taking brain injured children home causes high stress for families. Disjointed services exacerbate family stress levels."
Deborah Andrews; New Zealand
"Families need to be properly supported as 'resilience' is key to delivering successful outcomes for children and young people."
Roberta De Pompeii; USA
"Too often children and young people with ABI are discharged from hospital without specialist brain support that they and their families need to overcome lifelong challenges"
Andrew Ross; former Chief Executive of the Children's Trust
"We need to harness the power of brain plasticity for treating children and young people with brain injury, especially at the key ages of 0-3 and at ages 10-16"
Professor Bryan Kolb; Canada
"Children and young people have poor social competence post brain injury due to reduced cognition, executive functions, and emotional control. As a result they are twice as likely to have mental health issues in the future"
James Tonks; University of London
"Participation in teen sports and normal activities leads to improved quality of life for children and young people post brain injury and helps to maximise outcomes"
Claire Willis; Australia
"Strength-based family intervention after pediatric ABI is essential. Parents need to be equipped with the skills to cope and advocate for the child."
Caron Gan; Canada

OUR MISSION: To work to remove inequalities for children & young people affected by acquired brain injury; and provide effective support to their families that makes a real difference.

Council for Disabled Children Community Funded Charity Excellence Lottery Funded Youth Foundation BBC CiN