Reports

Whilst we do not directly undertake research, as part of our service delivery we gather a lot of insightful information. With the permission of our families, we collate this information into reports to help raise awareness of the real life issues that brain injured children and their families face. Our reports have been shared with MP’s and Multi Agency Partnership boards to try to influence Government Policy and key local leaders. Others have followed our lead in similar ways.

Below are listed some of the report previously disseminated to key players. They make shocking reading. Over time, we will add any more reports that we produce, to this page.

Enough Full Report written in 2017

Enough Report MP’s Briefing Note

"We would like to see earlier identification and support for children with brain injuries to help them succeed in school."

Dalton Leong; Chief Executive of the Children's Trust

"With support parents cope better so the child has a better recovery"

Andrea Palacio-Navarro; Spain

"Strength-based family intervention after pediatric ABI is essential. Parents need to be equipped with the skills to cope and advocate for the child."

Caron Gan; Canada

"Positive and coordinated neuro-rehab interventions for children and young people is proven to bring health improvements; improve independence; reduces the need for sheltered living; decreases vulnerability; decreases drop-out rates in schools; decreases youth offending"

Eric Hermans; Netherlands

"There are problems with getting people into neuro-rehab. Those most in need are often those most excluded due to a lack of socio-economic resources."

Vicki Anderson; Australia

"Families need to be properly supported as 'resilience' is key to delivering successful outcomes for children and young people."

Roberta De Pompeii; USA

"We are medical practitioners. The real experts are the parents. Over the last 35 years they have taught me everything I know"

Lucia Braga; Brazil

Child 1 - Aged 14 and 3 years after a traumatic brain injury

	2019	2020	Change
REASONING	301/800	426/800	+ 125
MEMORY	181/800	304/800	+ 123
ATTENTION	463/800	573/800	+ 110
COORDINATION	47/800	309/800	+ 262
PERCEPTION	158/800	374/800	+ 216

"Taking brain injured children home causes high stress for families. Disjointed services exacerbate family stress levels."

Deborah Andrews; New Zealand

"Parent-supported interventions after paediatric ABI bring reductions to the cost to society"

Eric Hermans; Netherlands

OUR MISSION: To work to remove inequalities for children & young people affected by acquired brain injury; and provide effective support to their families that makes a real difference.