An acquired brain injury is both life long and life changing, regardless of the level of severity. It is also a subject that is not widely understood across the general population.
Children and young people are often left with a range of complex issues that they need help and support with. Sometimes their problems are not easy to explain either to them, extended family members, friends and other community professionals. This brings about significant added pressure and increased frustration; thus making your life extremely stressful; which is not helpful when the family unit is already under increased physical, financial, emotional and psychological pressure.
We will therefore work with you to:
a) Improve your knowledge and understanding of acquired brain injury
b) Help you to understand how the brain injury has/is affecting your child
c) Work with you so that you understand how you can help your child or young person with their ongoing recovery and rehabilitation and are confident to undertake those tasks
d) Equip you with the skills to effectively manage the child or young person’s ongoing long-term condition or disability to maintain the ongoing care, recovery and rehabilitation process
e) Develop your personal skills to enable you to become a strong advocate for your child’s and their individual needs.
"Positive and coordinated neuro-rehab interventions for children and young people is proven to bring health improvements; improve independence; reduces the need for sheltered living; decreases vulnerability; decreases drop-out rates in schools; decreases youth offending"
"Taking brain injured children home causes high stress for families. Disjointed services exacerbate family stress levels."
"NHS clinicians struggle with what intervention to prioritise in paediatric neuro-rehabilitation due to limited clinical time and the complexity of needs. Children, clinicians, parents and schools all have different neuro-rehabilitation priorities"
"Healthy teens are better at identifying strategies to deal with barriers. KIDS WITH ABI'S CAN'T!"
"Strength-based family intervention after pediatric ABI is essential. Parents need to be equipped with the skills to cope and advocate for the child."
"Pediatric neuro-rehabilitation cannot be delivered in isolation. The needs of the child have to be looked at both holistically and within the context of the family unit. Parents need to be empowered to be parents in post-acute pediatric neuro-rehabilitation following brain injury"
"We would like to see earlier identification and support for children with brain injuries to help them succeed in school."
"Often families don't have the financial capability to access services. We need to rethink how we deliver neuro-rehab services to children and young people"
"Participation in teen sports and normal activities leads to improved quality of life for children and young people post brain injury and helps to maximise outcomes"
"We are medical practitioners. The real experts are the parents. Over the last 35 years they have taught me everything I know"