An acquired brain injury is both life long and life changing, regardless of the level of severity. It is also a subject that is not widely understood across the general population.
Children and young people are often left with a range of complex issues that they need help and support with. Sometimes their problems are not easy to explain either to them, extended family members, friends and other community professionals. This brings about significant added pressure and increased frustration; thus making your life extremely stressful; which is not helpful when the family unit is already under increased physical, financial, emotional and psychological pressure.
We will therefore work with you to:
a) Improve your knowledge and understanding of acquired brain injury
b) Help you to understand how the brain injury has/is affecting your child
c) Work with you so that you understand how you can help your child or young person with their ongoing recovery and rehabilitation and are confident to undertake those tasks
d) Equip you with the skills to effectively manage the child or young person’s ongoing long-term condition or disability to maintain the ongoing care, recovery and rehabilitation process
e) Develop your personal skills to enable you to become a strong advocate for your child’s and their individual needs.
"Pediatric neuro-rehabilitation cannot be delivered in isolation. The needs of the child have to be looked at both holistically and within the context of the family unit. Parents need to be empowered to be parents in post-acute pediatric neuro-rehabilitation following brain injury"
"Case management for children and young people post acquired brain injury is 'pivotal' to successful outcomes and must be local"
"We need to harness the power of brain plasticity for treating children and young people with brain injury, especially at the key ages of 0-3 and at ages 10-16"
"Thousands of children and young people living in the UK today without the help and support that can make a huge difference to their lives"
"There are problems with getting people into neuro-rehab. Those most in need are often those most excluded due to a lack of socio-economic resources."
"Families need to be properly supported as 'resilience' is key to delivering successful outcomes for children and young people."
"Children and young people have poor social competence post brain injury due to reduced cognition, executive functions, and emotional control. As a result they are twice as likely to have mental health issues in the future"
"We are medical practitioners. The real experts are the parents. Over the last 35 years they have taught me everything I know"