An acquired brain injury is both life long and life changing, regardless of the level of severity. It is also a subject that is not widely understood across the general population.
Children and young people are often left with a range of complex issues that they need help and support with. Sometimes their problems are not easy to explain either to them, extended family members, friends and other community professionals. This brings about significant added pressure and increased frustration; thus making your life extremely stressful; which is not helpful when the family unit is already under increased physical, financial, emotional and psychological pressure.
We will therefore work with you to:
a) Improve your knowledge and understanding of acquired brain injury
b) Help you to understand how the brain injury has/is affecting your child
c) Work with you so that you understand how you can help your child or young person with their ongoing recovery and rehabilitation and are confident to undertake those tasks
d) Equip you with the skills to effectively manage the child or young person’s ongoing long-term condition or disability to maintain the ongoing care, recovery and rehabilitation process
e) Develop your personal skills to enable you to become a strong advocate for your child’s and their individual needs.
"Taking brain injured children home causes high stress for families. Disjointed services exacerbate family stress levels."
"Rehabilitation interventions can lead to positive outcomes for children and their families if delivered in the familiar home environment and applied to everyday situations"
"Case management for children and young people post acquired brain injury is 'pivotal' to successful outcomes and must be local"
"Families and professionals spend time focusing on the negative aspects of ABI. Families need to be properly supported as 'resilience' is key to delivering successful outcomes for children and young people."
"Strength-based family intervention after pediatric ABI is essential. Parents need to be equipped with the skills to cope and advocate for the child."
"Thousands of children and young people living in the UK today without the help and support that can make a huge difference to their lives"
"We would like to see earlier identification and support for children with brain injuries to help them succeed in school."
"Positive and coordinated neuro-rehab interventions for children and young people is prove to bring health improvements; improve independence; a decline in the need for sheltered living; decreases vulnerability; decreases drop-out rates in schools; decreases youth offending"
"Restoration of anatomical functions and relationships must be done within 2 months of brain injury"
"We need to harness the power of brain plasticity for treating children and young people with brain injury. Stressful experiences alter brain development of a child, especially at the key ages of 0-3 and at ages 10-16"