An acquired brain injury is both life long and life changing, regardless of the level of severity. It is also a subject that is not widely understood across the general population.
Children and young people are often left with a range of complex issues that they need help and support with. Sometimes their problems are not easy to explain either to them, extended family members, friends and other community professionals. This brings about significant added pressure and increased frustration; thus making your life extremely stressful; which is not helpful when the family unit is already under increased physical, financial, emotional and psychological pressure.
We will therefore work with you to:
a) Improve your knowledge and understanding of acquired brain injury
b) Help you to understand how the brain injury has/is affecting your child
c) Work with you so that you understand how you can help your child or young person with their ongoing recovery and rehabilitation and are confident to undertake those tasks
d) Equip you with the skills to effectively manage the child or young person’s ongoing long-term condition or disability to maintain the ongoing care, recovery and rehabilitation process
e) Develop your personal skills to enable you to become a strong advocate for your child’s and their individual needs.
"With support parents cope better so the child has a better recovery"
"NHS clinicians struggle with what intervention to prioritise in paediatric neuro-rehabilitation due to limited clinical time and the complexity of needs. Children, clinicians, parents and schools all have different neuro-rehabilitation priorities"
"Brain development is complex and prolonged. Brain plasticity is influenced by a range of factors. Plasticity provides a base for neuro-rehab therapies and treatment"
"Case management for children and young people post acquired brain injury is 'pivotal' to successful outcomes and must be local"
"There are problems with getting people into neuro-rehab. Those most in need are often those most excluded due to a lack of socio-economic resources."
"Often families don't have the financial capability to access services. We need to rethink how we deliver neuro-rehab services to children and young people"
"Taking brain injured children home causes high stress for families. Disjointed services exacerbate family stress levels."
"Participation in teen sports and normal activities leads to improved quality of life for children and young people post brain injury and helps to maximise outcomes"
"Our 10 year study proves that family-led home-based neuro-rehab interventions deliver the best outcomes for children and young people"