An acquired brain injury is both life long and life changing, regardless of the level of severity. It is also a subject that is not widely understood across the general population.
Children and young people are often left with a range of complex issues that they need help and support with. Sometimes their problems are not easy to explain either to them, extended family members, friends and other community professionals. This brings about significant added pressure and increased frustration; thus making your life extremely stressful; which is not helpful when the family unit is already under increased physical, financial, emotional and psychological pressure.
We will therefore work with you to:
a) Improve your knowledge and understanding of acquired brain injury
b) Help you to understand how the brain injury has/is affecting your child
c) Work with you so that you understand how you can help your child or young person with their ongoing recovery and rehabilitation and are confident to undertake those tasks
d) Equip you with the skills to effectively manage the child or young person’s ongoing long-term condition or disability to maintain the ongoing care, recovery and rehabilitation process
e) Develop your personal skills to enable you to become a strong advocate for your child’s and their individual needs.
"Thousands of children and young people living in the UK today without the help and support that can make a huge difference to their lives"
"Intensive and individualized approaches work. A one-size-fits-all approach doesn't. You have to make it relevant to the child."
"Pediatric neuro-rehabilitation cannot be delivered in isolation. The needs of the child have to be looked at both holistically and within the context of the family unit. Parents need to be empowered to be parents in post-acute pediatric neuro-rehabilitation following brain injury"
"Too often children and young people with ABI are discharged from hospital without specialist brain support that they and their families need to overcome lifelong challenges"
"Restoration of anatomical functions and relationships must be done within 2 months of brain injury"
"There are problems with getting people into neuro-rehab centres. Those most in need are often those most excluded due to a lack of socio-economic resources."
"When someone has a brain injury, early access to local, specialist rehabilitation is crucial to ensure the maximum recovery and make significant savings to the state in health costs"
"Taking brain injured children home causes high stress for families. Disjointed services exacerbate family stress levels."
"Rehabilitation interventions can lead to positive outcomes for children and their families if delivered in the familiar home environment and applied to everyday situations"
"When different organisations assess different aspects of a child's neuro-rehabilitation needs, everyone looks at things from a different perspective and highlight needs and conflicting priorities"