An acquired brain injury is any damage to the brain that occurs after birth.
Road traffic accidents are the most common cause of ABI in older children and adolescents, whilst falls, being dropped or non-accidental injuries are more common in younger children and infants. (Ref: West, J; Cerebra; 2010)
“The NHS’s Draft Service Specification for Paediatric Neuro-rehabilitation, published in December 2012, estimated that around 40,000 children in the UK suffer a brain injury each Year” This is only an estimated figure and the incidence of acquired brain injury may in fact be much higher.
Of these, approximately:
However the severity of the brain injury, does not always reflect the level of impairment. In other words a person with a mild head injury may have been more significant impairments than a person with a severe head injury. Each case in unique to the individual.
MATRIX Neurological has therefore been formed to enable children and young people who have sustained an acquired brain injury, before the age of 19, to have immediate access upon discharge to high quality community-based services and support tailored specifically to their individual needs. We know our services are currently not available nationally. People supported by us will continue to have access to services from MATRIX Neurological until they are 25.
ABI is often referred to as a ‘hidden disability’, as survivors may have no physical evidence of their injury. Many of the impairments are not visible to others and it is only over time that the longer term effects may become apparent. The negative consequences of ABI can severely and permanently change a child’s life, as well as have a profound impact on the child’s family as a whole.
Impact on the child:
ABI can cause a range of long term disabilities such as communication and cognitive deficits, sleep disturbance, physical impairments such as post-traumatic epilepsy, depression and high rates of behaviour problems. The more severe the ABI, the greater the impairments of neuro-behavioural functions.
It is usually the cognitive, behavioural and personaity deficits that produce the greatest disruption to their quality of life. However, the long term effects often arise when childrn move into adolescence and adulthood and the true extent of these impairments may only become apparent when the child or adolescent returns to education and fails to meet develomental milestones.
Impact on the family:
It is well recognised that ABI affects both the injured individual and the family as a whole. Families experience panic and fear; shock and denial; anger; guilt and isolation and often no hope for the future. Although they eventually adapt to the increased demands of the brain injured child, it is also common for parents of children with an ABI to experience:
(Middleton, JA (2001); Brain Injury in children and adolescents: Advances in Psychiatric Treatment, 7, p257-265)
MATRIX Neurological was primarily set up to work with children, young people and their families who are living with the effects of an acquired brain injury who are in need of help or support. We are aware of the difficulties faced by parents and other community professionals in understanding what has happened and the effects of brain injury on the child or young person. Our services also aim to help parents understand a new way of living and we advocate for the on-going rehabilitation needs of the child or young person across a range of agencies.
"Case management for children and young people post acquired brain injury is 'pivotal' to successful outcomes and must be local"
"Taking brain injured children home causes high stress for families. Disjointed services exacerbate family stress levels."
"Often families don't have the financial capability to access services. We need to rethink how we delivery neuro-rehab services to children and young people"
"Positive and coordinated neuro-rehab interventions for children and young people is prove to bring health improvements; improve independence; a decline in the need for sheltered living; decreases vulnerability; decreases drop-out rates in schools; decreases youth offending"
"NHS clinicians struggle with what intervention to priorities in pediatric neuro-rehabilitation due to limited clinical time and the complexity of needs. Children, clinicians, parents and schools all have different neuro-rehabilitation priorities"
"Strength-based family intervention after pediatric ABI is essential. Parents need to be equipped with the skills to cope and advocate for the child."
"Thousands of children and young people living in the UK today without the help and support that can make a huge difference to their lives"
"Too often children and young people with ABI are discharged from hospital without specialist brain support that they and their families need to overcome lifelong challenges"
"Our 10 year study proves that family-led home-based neuro-rehab interventions deliver the best outcomes for children and young people"
"Poor parenting styles affects children's behavior; increased their learning disability; and had a negative impact on emotions; anxiety; anger management post brain injury"