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Family Views

Here are some of the comments we have received from a few of the families we are working with.

I cannot thank you enough and appreciate everything you do for us.  Our world was turned upside down and we were left on an unknown path and not knowing which way to go.  Without the help and support from all of you I have no idea where our family would have ended up.”  CW

 

“I really felt listened to and you cannot know just how important that is to me. I’m sure you recall just how frustrated I have felt in living through this experience. It was so unnecessary.”  NL

 

“Thank you for your valuable help.  You have been very kind and have put us in touch with the right people.  You do wonderful work for head injured people and you understand them.”   KJW

 

” Our world fell apart the day our daughter suffered a serous brain injury.  The dedication, care and support you are giving our little girl and our family give u so much hope for the future.  You are truly amazing people and we thank you so much.”  WJ

 

“We appreciate your input into our lives .  Now things are slowly turning around for us”.   Anon

 

It is a refreshing change to speak to someone who actually ‘gets it’ and knows what I am talking about.  We have been left in limbo and despair for many years.  I cannot explain the massive difference you have made.”   AD

 

“I think I was ready for giving up – just as I found you. Thank you for saving my baby” xxxx   Anon

 

We are so happy to have found this service.  We are getting so much more help and support – more than we have had in years.”  GR

 

The therapies you provide are really beneficial and I now get time to relax which is really helping me.”   CS

 

“We can’t believe the amount of work you have done for us.  We appreciate it all”.    ANON

 

Thank you so much for your time today.  Talking to you it really helped me.  CL

 

 

 

 

 

 

 

 

 

 


"Parent-supported interventions following pediatric ABI bring reductions to the cost to society"
Eric Hermans; Netherlands
"We would like to see earlier identification and support for children with brain injuries to help them succeed in school."
Dalton Leong; Chief Executive of the Children's Trust
"We are medical practitioners. The real experts are the parents. Over the last 35 years they have taught me everything I know"
Lucia Braga; Brazil
"More play increases brain plasticity and makes for better recovery post brain injury"
Professor Bryan Kolb; Canada
"Different 'experts' involved in pediatric neuro-rehabilitation come from different organisational cultures which causes conflict and has a negative effect on the outcomes for the child."
Barbara O'Connell; Ireland
"Too often children and young people with ABI are discharged from hospital without specialist brain support that they and their families need to overcome lifelong challenges"
Andrew Ross; former Chief Executive of the Children's Trust
"Pediatric neuro-rehabilitation cannot be delivered in isolation. The needs of the child have to be looked at both holistically and within the context of the family unit. Parents need to be empowered to be parents in post-acute pediatric neuro-rehabilitation following brain injury"
The Children's Trust; United Kingdom
"Poor parenting styles affects children's behavior; increased their learning disability; and had a negative impact on emotions; anxiety; anger management post brain injury"
Andrea Palacio-Navarro; Spain
"Healthy teens are better at identifying strategies to deal with barriers. KIDS WITH ABI'S CAN'T!"
Shari Wade; USA
"We need to harness the power of brain plasticity for treating children and young people with brain injury. Stressful experiences alter brain development of a child, especially at the key ages of 0-3 and at ages 10-16"
Professor Bryan Kolb; Canada

OUR MISSION: To work to remove (health) inequalities for children & young people affected by acquired brain injury; and provide effective support to their families that makes a real difference.

Council for Disabled Children Lottery Funded