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Family Views

Here are some of the comments we have received from a few of the families we are working with.

I cannot thank you enough and appreciate everything you do for us.  Our world was turned upside down and we were left on an unknown path and not knowing which way to go.  Without the help and support from all of you I have no idea where our family would have ended up.”  CW

 

“I really felt listened to and you cannot know just how important that is to me. I’m sure you recall just how frustrated I have felt in living through this experience. It was so unnecessary.”  NL

 

“Thank you for your valuable help.  You have been very kind and have put us in touch with the right people.  You do wonderful work for head injured people and you understand them.”   KJW

 

” Our world fell apart the day our daughter suffered a serous brain injury.  The dedication, care and support you are giving our little girl and our family give u so much hope for the future.  You are truly amazing people and we thank you so much.”  WJ

 

“We appreciate your input into our lives .  Now things are slowly turning around for us”.   Anon

 

It is a refreshing change to speak to someone who actually ‘gets it’ and knows what I am talking about.  We have been left in limbo and despair for many years.  I cannot explain the massive difference you have made.”   AD

 

“I think I was ready for giving up – just as I found you. Thank you for saving my baby” xxxx   Anon

 

We are so happy to have found this service.  We are getting so much more help and support – more than we have had in years.”  GR

 

The therapies you provide are really beneficial and I now get time to relax which is really helping me.”   CS

 

“We can’t believe the amount of work you have done for us.  We appreciate it all”.    ANON

 

Thank you so much for your time today.  Talking to you it really helped me.  CL

 

 

 

 

 

 

 

 

 

 


"Often families don't have the financial capability to access services. We need to rethink how we delivery neuro-rehab services to children and young people"
Vicki Anderson; Australia
"We would like to see earlier identification and support for children with brain injuries to help them succeed in school."
Dalton Leong; Chief Executive of the Children's Trust
"Our 10 year study proves that family-led home-based neuro-rehab interventions deliver the best outcomes for children and young people"
Lucia Braga; Brazil
"Case management for children and young people post acquired brain injury is 'pivotal' to successful outcomes and must be local"
Deborah Andrews; New Zealand
"NHS clinicians struggle with what intervention to priorities in pediatric neuro-rehabilitation due to limited clinical time and the complexity of needs. Children, clinicians, parents and schools all have different neuro-rehabilitation priorities"
Recolo; United Kingdom
"Different 'experts' involved in pediatric neuro-rehabilitation come from different organisational cultures which causes conflict and has a negative effect on the outcomes for the child."
Barbara O'Connell; Ireland
"Taking brain injured children home causes high stress for families. Disjointed services exacerbate family stress levels."
Deborah Andrews; New Zealand
"We are medical practitioners. The real experts are the parents. Over the last 35 years they have taught me everything I know"
Lucia Braga; Brazil
"More play increases brain plasticity and makes for better recovery post brain injury"
Professor Bryan Kolb; Canada
"Children and young people have poor social competence post brain injury due to reduced cognition, executive functions, and emotional control. As a result they are twice as likely to have mental health issues in the future"
James Tonks; University of London

OUR MISSION: To work to remove (health) inequalities for children & young people affected by acquired brain injury; and provide effective support to their families that makes a real difference.

Council for Disabled Children Lottery Funded