Family Views

Here are some of the comments we have received from a few of the families we are working with.

“We are truly grateful has a family for the services you have been providing for our son aged 19 and daughter aged 10, who both suffered brain injuries but in different circumstances.  The results from your work, are having great results in both children.  But we would like to acknowledge the latest milestone, in our son’s journey. On the 22-11-21 he was taken on by a joinery company as an apprentice.  This is a massive milestone following a severe brain injury in 2017.  His predicted outcome was not very good, and was expected to be in a wheelchair and in a vegetative state for the rest of his life.  We had early contact with Jan Rock from Matrix in Middlesbrough in the very first few weeks of our son’s severe brain injury, that was a blessing in disguise.  If our son and daughter children were left with just the NHS to fall back on, we would not see the results we are seeing today with both children. And that is a FACT!  Thank you once again for our son reaching yet another important milestone, with the professional work Matrix delivers to our family.”   SJ

 

“I think you have saved us both and I really mean that.  I am in a far better place than I have been in a very long time.  It has been mental torture for years from services that are supposed to help us.”  YM

 

“As a family we spent 6 months in the medical wilderness being fobbed off and passed around different departments with little or no help, support or guidance following our son’s traumatic brain injury.  Then we met Matrix and everything changed”.  WP

 

“Thank you so much for your time today.  Talking to you – it really helped me.”  CL

 

“Matrix has given me a massive confidence boost. I now feel I can speak up more about what my son needs!”   BR

 

I cannot thank you enough and appreciate everything you do for us.  Our world was turned upside down and we were left on an unknown path and not knowing which way to go.  Without the help and support from all of you I have no idea where our family would have ended up.”  CW

  

“I really felt listened to and you cannot know just how important that is to me. I’m sure you recall just how frustrated I have felt in living through this experience. It was so unnecessary.”  NL

  

“Thank you for your valuable help.  You have been very kind and have put us in touch with the right people.  You do wonderful work for head injured people and you understand them.”   KJW

  

” Our world fell apart the day our daughter suffered a serous brain injury.  The dedication, care and support you are giving our little girl and our family give u so much hope for the future.  You are truly amazing people and we thank you so much.”  WJ

 

“We appreciate your input into our lives .  Now things are slowly turning around for us”.   Anon

 

“It is a refreshing change to speak to someone who actually ‘gets it’ and knows what I am talking about.  We have been left in limbo and despair for many years.  I cannot explain the massive difference you have made.”   AD

 

“I think I was ready for giving up – just as I found you. Thank you for saving my baby” xxxx   Anon

 

“We are so happy to have found this service.  We are getting so much more help and support – more than we have had in years.”  GR

 

“The therapies you provide are really beneficial and I now get time to relax which is really helping me.”   CS

 

“We can’t believe the amount of work you have done for us.  We appreciate it all”.    ANON

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

"Pediatric neuro-rehabilitation cannot be delivered in isolation. The needs of the child have to be looked at both holistically and within the context of the family unit. Parents need to be empowered to be parents in post-acute pediatric neuro-rehabilitation following brain injury"
The Children's Trust; United Kingdom
"Rehabilitation interventions can lead to positive outcomes for children and their families if delivered in the familiar home environment and applied to everyday situations"
Cerebra; United Kingdom
"Taking brain injured children home causes high stress for families. Disjointed services exacerbate family stress levels."
Deborah Andrews; New Zealand
"Children and young people have poor social competence post brain injury due to reduced cognition, executive functions, and emotional control. As a result they are twice as likely to have mental health issues in the future"
James Tonks; University of London
"When someone has a brain injury, early access to local, specialist rehabilitation is crucial to ensure the maximum recovery and make significant savings to the state in health costs"
Headway; United Kingdom
"There are problems with getting people into neuro-rehab. Those most in need are often those most excluded due to a lack of socio-economic resources."
Vicki Anderson; Australia
"NHS clinicians struggle with what intervention to prioritise in paediatric neuro-rehabilitation due to limited clinical time and the complexity of needs. Children, clinicians, parents and schools all have different neuro-rehabilitation priorities"
Recolo; United Kingdom
"Intensive and individualized approaches work. A one-size-fits-all approach doesn't. You have to make it relevant to the child."
Recolo; United Kingdom
"Case management for children and young people post acquired brain injury is 'pivotal' to successful outcomes and must be local"
Deborah Andrews; New Zealand
"Brain development is complex and prolonged. Brain plasticity is influenced by a range of factors. Plasticity provides a base for neuro-rehab therapies and treatment"
Professor Bryan Kolb; Canada

OUR MISSION: To work to remove inequalities for children & young people affected by acquired brain injury; and provide effective support to their families that makes a real difference to their lives.

Council for Disabled Children Community Funded Charity Excellence Lottery Funded Youth Foundation BBC CiN