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What do we know about local provision?

Currently, the local NHS patient pathway for paediatric brain injury is as follows:

  • Traumatic brain injury patients are admitted to either James Cook University Hospital or The Great North Children’s Hospital (formerly known as the RVI Newcastle)
  • Atraumatic acquired brain injury – the majority go to the Great North Children’s Hospital but also to James Cook University Hospital as well as district hospitals
  • After initial stabilisation and acute care, children receive intense in-patient neuro-rehabilitation
  • Multidisciplinary – physiotherapist, occupational therapist, speech and language therapist, neurophsychologist, play therapist, ward teacher, paediatrician/neurologist
  • There is goal setting and assessment
  • Rehabilitation only tends to focus on mobility, improving speech/communication, swallowing, activities of daily living and self care
  • Discharge to home with ongoing rehabilitation in the community eg physiotherapist, occupational therapist, speech and language therapist, neuropsychologist
  • Educational psychologist and special educational needs coordinator

Problems with current community provision across a range of sectors and professions:

  • No common goal setting
  • Uncoordinated
  • Infrequent – it is not enough
  • An unfamiliarity with the challenges of acquired brain injury

What do children and young people need for better outcomes?

  • Well coordinated, integrated community neuro-rehabilitation – managed by a Case Manager taking on the child’s individual specific needs
  • Increased access to community based therapy which is intensive, individualised and supplements and compliments existing services
  • Individualised education support which starts at home and then integrates into school
  • Ongoing education, advocacy and practical support for families aimed at reducing parental burden and improving individual health and wellbeing

We know that this cannot be achieved from a distance!

Being integral to local public, private and third sector networks is essential to maximise the benefits of local resources to get the best possible outcomes for children, young people and their families; especially in times of austerity.

This is why MATRIX Neurological has been formed.  We use ‘the lived experience’ to drive change, build partnerships, pool resources and save money; thus do more-for-less.


"More play increases brain plasticity and makes for better recovery post brain injury"
Professor Bryan Kolb; Canada
"Different 'experts' involved in pediatric neuro-rehabilitation come from different organisational cultures which causes conflict and has a negative effect on the outcomes for the child."
Barbara O'Connell; Ireland
"Pediatric neuro-rehabilitation cannot be delivered in isolation. The needs of the child have to be looked at both holistically and within the context of the family unit. Parents need to be empowered to be parents in post-acute pediatric neuro-rehabilitation following brain injury"
The Children's Trust; United Kingdom
"Participation in teen sports and normal activities leads to improved quality of life for children and young people post brain injury and helps to maximise outcomes"
Claire Willis; Australia
"We would like to see earlier identification and support for children with brain injuries to help them succeed in school."
Dalton Leong; Chief Executive of the Children's Trust
"We need to harness the power of brain plasticity for treating children and young people with brain injury. Stressful experiences alter brain development of a child, especially at the key ages of 0-3 and at ages 10-16"
Professor Bryan Kolb; Canada
"Rehabilitation interventions can lead to positive outcomes for children and their families if delivered in the familiar home environment and applied to everyday situations"
Cerebra; United Kingdom
"There are problems with getting people into neuro-rehab centres. Those most in need are often those most excluded due to a lack of socio-economic resources."
Vicki Anderson; Australia
"Too often children and young people with ABI are discharged from hospital without specialist brain support that they and their families need to overcome lifelong challenges"
Andrew Ross; former Chief Executive of the Children's Trust
"Healthy teens are better at identifying strategies to deal with barriers. KIDS WITH ABI'S CAN'T!"
Shari Wade; USA

OUR MISSION: To work to remove (health) inequalities for children & young people affected by acquired brain injury; and provide effective support to their families that makes a real difference.

Council for Disabled Children Lottery Funded