Currently, the local NHS patient pathway for paediatric brain injury is as follows:
Problems with current community provision across a range of sectors and professions:
What do children and young people need for better outcomes?
We know that this cannot be achieved from a distance!
Being integral to local public, private and third sector networks is essential to maximise the benefits of local resources to get the best possible outcomes for children, young people and their families; especially in times of austerity.
This is why MATRIX Neurological has been formed. We use ‘the lived experience’ to drive change, build partnerships, pool resources and save money; thus do more-for-less.
"Pediatric neuro-rehabilitation cannot be delivered in isolation. The needs of the child have to be looked at both holistically and within the context of the family unit. Parents need to be empowered to be parents in post-acute pediatric neuro-rehabilitation following brain injury"
"Our 10 year study proves that family-led home-based neuro-rehab interventions deliver the best outcomes for children and young people"
"Thousands of children and young people living in the UK today without the help and support that can make a huge difference to their lives"
"More play increases brain plasticity and makes for better recovery post brain injury"
"NHS clinicians struggle with what intervention to priorities in pediatric neuro-rehabilitation due to limited clinical time and the complexity of needs. Children, clinicians, parents and schools all have different neuro-rehabilitation priorities"
"We are medical practitioners. The real experts are the parents. Over the last 35 years they have taught me everything I know"
"Case management for children and young people post acquired brain injury is 'pivotal' to successful outcomes and must be local"
"Restoration of anatomical functions and relationships must be done within 2 months of brain injury"
"New parenting support intervention showed how parenting style is related to executive dysfunction in children and young people post brain injury. With support parents cope better so the child has a better recovery"
"Often families don't have the financial capability to access services. We need to rethink how we delivery neuro-rehab services to children and young people"