Currently, the local NHS patient pathway for paediatric brain injury is as follows:
Problems with current community provision across a range of sectors and professions:
What do children and young people need for better outcomes?
We know that this cannot be achieved from a distance!
Being integral to local public, private and third sector networks is essential to maximise the benefits of local resources to get the best possible outcomes for children, young people and their families; especially in times of austerity.
This is why MATRIX Neurological has been formed. We use ‘the lived experience’ to drive change, build partnerships, pool resources and save money; thus do more-for-less.
"When different organisations assess different aspects of a child's neuro-rehabilitation needs, everyone looks at things from a different perspective and highlight needs and conflicting priorities"
"Pediatric neuro-rehabilitation cannot be delivered in isolation. The needs of the child have to be looked at both holistically and within the context of the family unit. Parents need to be empowered to be parents in post-acute pediatric neuro-rehabilitation following brain injury"
"Participation in teen sports and normal activities leads to improved quality of life for children and young people post brain injury and helps to maximise outcomes"
"Often families don't have the financial capability to access services. We need to rethink how we delivery neuro-rehab services to children and young people"
"Healthy teens are better at identifying strategies to deal with barriers. KIDS WITH ABI'S CAN'T!"
"Restoration of anatomical functions and relationships must be done within 2 months of brain injury"
"More play increases brain plasticity and makes for better recovery post brain injury"
"New parenting support intervention showed how parenting style is related to executive dysfunction in children and young people post brain injury. With support parents cope better so the child has a better recovery"
"Rehabilitation interventions can lead to positive outcomes for children and their families if delivered in the familiar home environment and applied to everyday situations"
"Children and young people have poor social competence post brain injury due to reduced cognition, executive functions, and emotional control. As a result they are twice as likely to have mental health issues in the future"