Currently, the local NHS patient pathway for paediatric brain injury is as follows:
Problems with current community provision across a range of sectors and professions:
What do children and young people need for better outcomes?
We know that this cannot be achieved from a distance!
Being integral to local public, private and third sector networks is essential to maximise the benefits of local resources to get the best possible outcomes for children, young people and their families; especially in times of austerity.
This is why MATRIX Neurological has been formed. We use ‘the lived experience’ to drive change, build partnerships, pool resources and save money; thus do more-for-less.
"We would like to see earlier identification and support for children with brain injuries to help them succeed in school."
"We are medical practitioners. The real experts are the parents. Over the last 35 years they have taught me everything I know"
"Healthy teens are better at identifying strategies to deal with barriers. KIDS WITH ABI'S CAN'T!"
"Pediatric neuro-rehabilitation cannot be delivered in isolation. The needs of the child have to be looked at both holistically and within the context of the family unit. Parents need to be empowered to be parents in post-acute pediatric neuro-rehabilitation following brain injury"
"Taking brain injured children home causes high stress for families. Disjointed services exacerbate family stress levels."
"When different organisations assess different aspects of a child's neuro-rehabilitation needs, everyone looks at things from a different perspective and highlight needs and conflicting priorities"
"Strength-based family intervention after pediatric ABI is essential. Parents need to be equipped with the skills to cope and advocate for the child."
"Poor parenting styles affects children's behavior; increased their learning disability; and had a negative impact on emotions; anxiety; anger management post brain injury"
"Too often children and young people with ABI are discharged from hospital without specialist brain support that they and their families need to overcome lifelong challenges"
"NHS clinicians struggle with what intervention to priorities in pediatric neuro-rehabilitation due to limited clinical time and the complexity of needs. Children, clinicians, parents and schools all have different neuro-rehabilitation priorities"