What does neuro-rehabilitation do?
‘Rehabilitation aims to reduce the impact of (brain) injury by restoration of damaged function, or compensation for lost function, within the limitations of underlying disease, to optimise physical, cognitive, psychological and social function.’ (Seeley & Hutchinson, 2006)
What do we know?
From adult studies of traumatic brain injury:
Better access to neuro-rehabilitation associated with better outcomes means people:
* This is is the main focus of our charitable work and where we add value to existing NHS provision.
Additionally, the outcome of a paediatric acquired brain injury is related to family function, economic factors and social support. Neuro-rehabilitation is therefore not just about physiotherapy, occupational therapy ,speech and language therapy etc. Children, young people and their families need lots of ongoing support during the neuro-rehabilitation journey; and for long after the usual therapy interventions have ended.
Neuro-rehabilitation is most effective if:
Post discharge is where these very vulnerable children are most at risk of not receiving the help and support they need, due to a lack of understanding of their hidden disabilities. Working in partnership with parents and professionals, we coordinate the ongoing needs of brain injured children and young people across a range of community organisations; ensuring their ongoing and often changing needs continue to be met. Without us, this does not happen and the needs of this vulnerable cohort often go unrecognised and unsupported.
"Pediatric neuro-rehabilitation cannot be delivered in isolation. The needs of the child have to be looked at both holistically and within the context of the family unit. Parents need to be empowered to be parents in post-acute pediatric neuro-rehabilitation following brain injury"
"Families and professionals spend time focusing on the negative aspects of ABI. Families need to be properly supported as 'resilience' is key to delivering successful outcomes for children and young people."
"When different organisations assess different aspects of a child's neuro-rehabilitation needs, everyone looks at things from a different perspective and highlight needs and conflicting priorities"
"Intensive and individualized approaches work. A one-size-fits-all approach doesn't. You have to make it relevant to the child."
"Brain development is complex and prolonged. Brain plasticity is influenced by a range of factors. Plasticity provides a base for neuro-rehab therapies and treatment"
"We would like to see earlier identification and support for children with brain injuries to help them succeed in school."
"Positive and coordinated neuro-rehab interventions for children and young people is prove to bring health improvements; improve independence; a decline in the need for sheltered living; decreases vulnerability; decreases drop-out rates in schools; decreases youth offending"
"Strength-based family intervention after pediatric ABI is essential. Parents need to be equipped with the skills to cope and advocate for the child."
"Parent-supported interventions following pediatric ABI bring reductions to the cost to society"
"Too often children and young people with ABI are discharged from hospital without specialist brain support that they and their families need to overcome lifelong challenges"