Neuro-rehabilitation

What does neuro-rehabilitation do?
‘Rehabilitation aims to reduce the impact of (brain) injury by restoration of damaged function, or compensation for lost function, within the limitations of underlying disease, to optimise physical, cognitive, psychological and social function.’ (Seeley & Hutchinson, 2006)

What do we know?
From adult studies of traumatic brain injury:
Better access to neuro-rehabilitation associated with better outcomes means people:

are more likely to be discharged home
have a shorter hospital stay
have better functional outcome which was maintained after period of rehabilitation has ended *
decreases levels of distress of carers *

* This is is the main focus of our charitable work and where we add value to existing NHS provision.

Additionally, the outcome of a paediatric acquired brain injury is related to family function, economic factors and social support. Neuro-rehabilitation is therefore not just about physiotherapy, occupational therapy ,speech and language therapy etc. Children, young people and their families need lots of ongoing support during the neuro-rehabilitation journey; and for long after the usual therapy interventions have ended.

Neuro-rehabilitation is most effective if:

It is delivered by a coordinated multi-disciplinary team with an interdisciplinary approach

There is goal setting and assessment

There is a key worker to communicate and provide advocacy for the child and the family

It is individually tailored to need

Is seamless

It is meaningful and delivered in relevant context

An appropriate level of therapy and support is provided

Access to suitable educational provision is available

Psychological needs are addressed

It involves and supports the family

Post discharge is where these very vulnerable children are most at risk of not receiving the help and support they need, due to a lack of understanding of their hidden disabilities. Working in partnership with parents and professionals, we coordinate the ongoing needs of brain injured children and young people across a range of community organisations; ensuring their ongoing and often changing needs continue to be met. Without us, this does not happen and the needs of this vulnerable cohort often go unrecognised and unsupported.

"Poor parenting styles affects children's behavior; increased their learning disability; and had a negative impact on emotions; anxiety; anger management post brain injury"

Andrea Palacio-Navarro; Spain

"New parenting support intervention showed how parenting style is related to executive dysfunction in children and young people post brain injury. With support parents cope better so the child has a better recovery"

Andrea Palacio-Navarro; Spain

"Strength-based family intervention after pediatric ABI is essential. Parents need to be equipped with the skills to cope and advocate for the child."

Caron Gan; Canada

"Intensive and individualized approaches work. A one-size-fits-all approach doesn't. You have to make it relevant to the child."

Recolo; United Kingdom

"Our 10 year study proves that family-led home-based neuro-rehab interventions deliver the best outcomes for children and young people"

Lucia Braga; Brazil

"Case management for children and young people post acquired brain injury is 'pivotal' to successful outcomes and must be local"

Deborah Andrews; New Zealand

"NHS clinicians struggle with what intervention to priorities in pediatric neuro-rehabilitation due to limited clinical time and the complexity of needs. Children, clinicians, parents and schools all have different neuro-rehabilitation priorities"

Recolo; United Kingdom

"We are medical practitioners. The real experts are the parents. Over the last 35 years they have taught me everything I know"

Lucia Braga; Brazil

"Brain development is complex and prolonged. Brain plasticity is influenced by a range of factors. Plasticity provides a base for neuro-rehab therapies and treatment"

Professor Bryan Kolb; Canada

"Restoration of anatomical functions and relationships must be done within 2 months of brain injury"

Eyzyon Eisentein; Israel

OUR MISSION: To work to remove (health) inequalities for children & young people affected by acquired brain injury; and provide effective support to their families that makes a real difference.