To ensure the delivery of our services meets identified needs, we have undertaken wide consultation and taken on board the views and recommendations of a number of sources, including families living with the effects of an acquired brain injury and a range of health professionals. Additionally the Founder of our charity knows what help and support both her and her family needed at the time of her son’s accident. Unfortunately these were not available.
This means that all our services are developed, not only on a clearly identified need, but from a personal ‘living the nightmare’ perspective.
As such we believe we are in the unique position of providing ‘what people actually need’ as opposed to what people ‘think they need’. Our deeper understanding enables us to develop and deliver services that make a real and measurable difference to the children and families who need us. We believe in:
We understand that the rehabilitation journey towards recovery is a marathon and not a short sprint. Neurological improvements take time and progress is sometimes erratic and frustratingly slow. We know that short term uncoordinated interventions do not deliver the right outcomes for people; so we offer a range of integrated services for children, young people and their families aimed at supporting them for the long-term.
Our services can be accessed in a number of ways:
"NHS clinicians struggle with what intervention to prioritise in paediatric neuro-rehabilitation due to limited clinical time and the complexity of needs. Children, clinicians, parents and schools all have different neuro-rehabilitation priorities"
"When different organisations assess different aspects of a child's neuro-rehabilitation needs, everyone looks at things from a different perspective and have conflicting priorities"
"Case management for children and young people post acquired brain injury is 'pivotal' to successful outcomes and must be local"
"Children and young people have poor social competence post brain injury due to reduced cognition, executive functions, and emotional control. As a result they are twice as likely to have mental health issues in the future"
"We would like to see earlier identification and support for children with brain injuries to help them succeed in school."
"When someone has a brain injury, early access to local, specialist rehabilitation is crucial to ensure the maximum recovery and make significant savings to the state in health costs"
"Taking brain injured children home causes high stress for families. Disjointed services exacerbate family stress levels."
"We are medical practitioners. The real experts are the parents. Over the last 35 years they have taught me everything I know"