To ensure the delivery of our services meets identified needs, we have undertaken wide consultation and taken on board the views and recommendations of a number of sources, including families living with the effects of an acquired brain injury and a range of health professionals. Additionally the Founder of our charity knows what help and support both her and her family needed at the time of her son’s accident. Unfortunately these were not available.
This means that all our services are developed, not only on a clearly identified need, but from a personal ‘living the nightmare’ perspective.
As such we believe we are in the unique position of providing ‘what people actually need’ as opposed to what people ‘think they need’. Our deeper understanding enables us to develop and deliver services that make a real and measurable difference to the children and families who need us. We believe in:
We understand that the rehabilitation journey towards recovery is a marathon and not a short sprint. Neurological improvements take time and progress is sometimes erratic and frustratingly slow. We know that short term uncoordinated interventions do not deliver the right outcomes for people; so we offer a range of integrated services for children, young people and their families aimed at supporting them for the long-term.
Our services can be accessed in a number of ways:
"Pediatric neuro-rehabilitation cannot be delivered in isolation. The needs of the child have to be looked at both holistically and within the context of the family unit. Parents need to be empowered to be parents in post-acute pediatric neuro-rehabilitation following brain injury"
"We are medical practitioners. The real experts are the parents. Over the last 35 years they have taught me everything I know"
"Different 'experts' involved in pediatric neuro-rehabilitation come from different organisational cultures which causes conflict and has a negative effect on the outcomes for the child."
"Thousands of children and young people living in the UK today without the help and support that can make a huge difference to their lives"
"We would like to see earlier identification and support for children with brain injuries to help them succeed in school."
"Strength-based family intervention after pediatric ABI is essential. Parents need to be equipped with the skills to cope and advocate for the child."
"NHS clinicians struggle with what intervention to priorities in pediatric neuro-rehabilitation due to limited clinical time and the complexity of needs. Children, clinicians, parents and schools all have different neuro-rehabilitation priorities"
"Rehabilitation interventions can lead to positive outcomes for children and their families if delivered in the familiar home environment and applied to everyday situations"
"Children and young people have poor social competence post brain injury due to reduced cognition, executive functions, and emotional control. As a result they are twice as likely to have mental health issues in the future"
"Parent-supported interventions following pediatric ABI bring reductions to the cost to society"