To ensure the delivery of our services meets identified needs, we have undertaken wide consultation and taken on board the views and recommendations of a number of sources, including families living with the effects of an acquired brain injury and a range of health professionals. Additionally the Founder of our charity knows what help and support both her and her family needed at the time of her son’s accident. Unfortunately these were not available.
This means that all our services are developed, not only on a clearly identified need, but from a personal ‘living the nightmare’ perspective.
As such we believe we are in the unique position of providing ‘what people actually need’ as opposed to what people ‘think they need’. Our deeper understanding enables us to develop and deliver services that make a real and measurable difference to the children and families who need us. We believe in:
We understand that the rehabilitation journey towards recovery is a marathon and not a short sprint. Neurological improvements take time and progress is sometimes erratic and frustratingly slow. We know that short term uncoordinated interventions do not deliver the right outcomes for people; so we offer a range of integrated services for children, young people and their families aimed at supporting them for the long-term.
Our services can be accessed in a number of ways:
"Participation in teen sports and normal activities leads to improved quality of life for children and young people post brain injury and helps to maximise outcomes"
"Taking brain injured children home causes high stress for families. Disjointed services exacerbate family stress levels."
"We would like to see earlier identification and support for children with brain injuries to help them succeed in school."
"There are problems with getting people into neuro-rehab centres. Those most in need are often those most excluded due to a lack of socio-economic resources."
"Too often children and young people with ABI are discharged from hospital without specialist brain support that they and their families need to overcome lifelong challenges"
"Rehabilitation interventions can lead to positive outcomes for children and their families if delivered in the familiar home environment and applied to everyday situations"
"NHS clinicians struggle with what intervention to priorities in pediatric neuro-rehabilitation due to limited clinical time and the complexity of needs. Children, clinicians, parents and schools all have different neuro-rehabilitation priorities"
"Poor parenting styles affects children's behavior; increased their learning disability; and had a negative impact on emotions; anxiety; anger management post brain injury"
"Families and professionals spend time focusing on the negative aspects of ABI. Families need to be properly supported as 'resilience' is key to delivering successful outcomes for children and young people."
"Brain development is complex and prolonged. Brain plasticity is influenced by a range of factors. Plasticity provides a base for neuro-rehab therapies and treatment"