To ensure the delivery of our services meets identified needs, we have undertaken wide consultation and taken on board the views and recommendations of a number of sources, including families living with the effects of an acquired brain injury and a range of health professionals. Additionally the Founder of our charity knows what help and support both her and her family needed at the time of her son’s accident. Unfortunately these were not available.
This means that all our services are developed, not only on a clearly identified need, but from a personal ‘living the nightmare’ perspective.
As such we believe we are in the unique position of providing ‘what people actually need’ as opposed to what people ‘think they need’. Our deeper understanding enables us to develop and deliver services that make a real and measurable difference to the children and families who need us. We believe in:
We understand that the rehabilitation journey towards recovery is a marathon and not a short sprint. Neurological improvements take time and progress is sometimes erratic and frustratingly slow. We know that short term uncoordinated interventions do not deliver the right outcomes for people; so we offer a range of integrated services for children, young people and their families aimed at supporting them for the long-term.
Our services can be accessed in a number of ways:
"There are problems with getting people into neuro-rehab. Those most in need are often those most excluded due to a lack of socio-economic resources."
"Thousands of children and young people living in the UK today without the help and support that can make a huge difference to their lives"
"Taking brain injured children home causes high stress for families. Disjointed services exacerbate family stress levels."
"Case management for children and young people post acquired brain injury is 'pivotal' to successful outcomes and must be local"
"Too often children and young people with ABI are discharged from hospital without specialist brain support that they and their families need to overcome lifelong challenges"
"Families need to be properly supported as 'resilience' is key to delivering successful outcomes for children and young people."
"Parent-supported interventions after paediatric ABI bring reductions to the cost to society"
"We are medical practitioners. The real experts are the parents. Over the last 35 years they have taught me everything I know"
"We need to harness the power of brain plasticity for treating children and young people with brain injury, especially at the key ages of 0-3 and at ages 10-16"