To ensure the delivery of our services meets identified needs, we have undertaken wide consultation and taken on board the views and recommendations of a number of sources, including families living with the effects of an acquired brain injury and a range of health professionals. Additionally the Founder of our charity knows what help and support both her and her family needed at the time of her son’s accident. Unfortunately these were not available.
This means that all our services are developed, not only on a clearly identified need, but from a personal ‘living the nightmare’ perspective.
As such we believe we are in the unique position of providing ‘what people actually need’ as opposed to what people ‘think they need’. Our deeper understanding enables us to develop and deliver services that make a real and measurable difference to the children and families who need us. We believe in:
We understand that the rehabilitation journey towards recovery is a marathon and not a short sprint. Neurological improvements take time and progress is sometimes erratic and frustratingly slow. We know that short term uncoordinated interventions do not deliver the right outcomes for people; so we offer a range of integrated services for children, young people and their families aimed at supporting them for the long-term.
Our services can be accessed in a number of ways:
"Taking brain injured children home causes high stress for families. Disjointed services exacerbate family stress levels."
"Healthy teens are better at identifying strategies to deal with barriers. KIDS WITH ABI'S CAN'T!"
"Pediatric neuro-rehabilitation cannot be delivered in isolation. The needs of the child have to be looked at both holistically and within the context of the family unit. Parents need to be empowered to be parents in post-acute pediatric neuro-rehabilitation following brain injury"
"When different organisations assess different aspects of a child's neuro-rehabilitation needs, everyone looks at things from a different perspective and have conflicting priorities"
"There are problems with getting people into neuro-rehab. Those most in need are often those most excluded due to a lack of socio-economic resources."
"Children and young people have poor social competence post brain injury due to reduced cognition, executive functions, and emotional control. As a result they are twice as likely to have mental health issues in the future"
"Rehabilitation interventions can lead to positive outcomes for children and their families if delivered in the familiar home environment and applied to everyday situations"
"Case management for children and young people post acquired brain injury is 'pivotal' to successful outcomes and must be local"
"NHS clinicians struggle with what intervention to prioritise in paediatric neuro-rehabilitation due to limited clinical time and the complexity of needs. Children, clinicians, parents and schools all have different neuro-rehabilitation priorities"
"Brain development is complex and prolonged. Brain plasticity is influenced by a range of factors. Plasticity provides a base for neuro-rehab therapies and treatment"