Monthly Archives: March 2025

Brain Injury Stole My Daughter

March 4th, 2025

Federica Bedendo – BBC News, North East and Cumbria and Amy Oakden – BBC Radio Tees Fri, February 21, 2025 at 6:30 AM GMT    3 min read Bella had had a “perfectly healthy childhood” but her life changed after contracting Covid-19 [Family handout] The mother of a teenager who acquired a brain injury after […]

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This is the best support plan we have ever seen that will deliver the best outcomes for this young person.  The costings are 'spot on' and realistic'.  Direct Payments Team.  
"Positive and coordinated neuro-rehab interventions for children and young people is proven to bring health improvements; improve independence; reduces the need for sheltered living; decreases vulnerability; decreases drop-out rates in schools; decreases youth offending"
Eric Hermans; Netherlands
"NHS clinicians struggle with what intervention to prioritise in paediatric neuro-rehabilitation due to limited clinical time and the complexity of needs. Children, clinicians, parents and schools all have different neuro-rehabilitation priorities"
Recolo; United Kingdom
"We are impressed with the progress you have made with the individual we referred to you."  Social Worker    
"We need to harness the power of brain plasticity for treating children and young people with brain injury, especially at the key ages of 0-3 and at ages 10-16"
Professor Bryan Kolb; Canada
"Families need to be properly supported as 'resilience' is key to delivering successful outcomes for children and young people."
Roberta De Pompeii; USA
"Strength-based family intervention after pediatric ABI is essential. Parents need to be equipped with the skills to cope and advocate for the child."
Caron Gan; Canada
"Intensive and individualized approaches work. A one-size-fits-all approach doesn't. You have to make it relevant to the child."
Recolo; United Kingdom
"Children and young people have poor social competence post brain injury due to reduced cognition, executive functions, and emotional control. As a result they are twice as likely to have mental health issues in the future"
James Tonks; University of London
"Different 'experts' involved in paediatric neuro-rehabilitation come from different organisational cultures which causes conflict and has a negative effect on the outcomes for the child."
Barbara O'Connell; Ireland

OUR MISSION: To work to remove inequalities for children & young people affected by acquired brain injury; and provide effective support to their families that makes a real difference to their lives.

Council for Disabled Children Community Funded Charity Excellence Lottery Funded Youth Foundation BBC CiN